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-   -   Newbie here (http://her2support.org/vbulletin/showthread.php?t=61969)

mouser2843 10-06-2014 01:05 AM

Newbie here
On December 31, 2013 I received that dreaded phone call.. .it's cancer. I was diagnosed with stage 2, grade 2 Invasive Ductal Carcenoma. I did have a mastectomy on my left breast with the tumour being about 5 cm. I have completed my chemo treatments of AC/TH but have now been put on hold from continuing just the Herceptin as my last MUGA was not great. I went from 55% down to 40% so oncologist told me that's it, no more for you. I still my port-a-cath in as now I'm being sent to a cardiologist which I will be seeing this coming Thursday. Really concerned about not getting the full Herceptin of one year (only 4 treatments!). Terrified of recurrence. Am hoping to have other breast removed as a precaution, but everything is on hold due to bad MUGA results! ARG... on the good side... my hair is starting to grow out, I actually have fuzz all over my head now (last chemo was Aug. 9th!!!) so it does take quite awhile for it to grow in! Otherwise am doing okay, still have headaches all the time, neuropathy is hands is so much better, but not so much in feet. Anyone else in this position of only getting 4 Herceptin instead of the full year?

Nurse4u2day 10-06-2014 01:13 PM

Re: Newbie here
Mouser from my understanding they will reject your heart function again in the near future and may possibly start the herceptin again. I know there have been a few women who had to stop and start again. Others will chime in and help you through this. My Muga scans are slowly dropping but nothing drastic . I have 5 months left of Herceptin and sit and hope that my heart can continue to handle this treatment .

Dakini52 12-17-2014 03:57 PM

Re: Newbie here
That is the typical way a low MUGA is handled while on Herceptin. I would be sure to let them know that you want to finish the treatment and be sure they are on top of redoing the muga. Many women's heart function will go back up pretty quickly if they take a break from the Herceptin.

sassy 12-17-2014 05:57 PM

Re: Newbie here
You may want to look into CoQ10 as a supplement.

If you do a seach on the site there should be threads that discuss it.

Best wishes,

Dakini52 12-21-2014 09:06 PM

Re: Newbie here
Have you talked with your onc about going off it for awhile and monitoring your MUGA? I know for some people the MUGA will go back up pretty rapidly and they can try more Herceptin. Worth a try maybe. I also take CoQ10 twice a day; 100 mg each. My endocrinologist recommended this. My onc also advised me to take folic acid every day. Vitamin D and fish oil are also supplements to consider.

I have been on Herceptin for 5 years almost and so far my MUGA results have been fine.

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