Clinical Trial for newly diagnosed -any others?
 

I'm looking for anyone who did the clinical trial I did for newly diagnosed women with HER2 - Herceptin/Tykerb.

The purpose of my trial was to see if this combo would shrink tumors. The trial lasted for 3 months and was weekly Herceptin and 4 Tykerb daily. I know I was the first patient at Vanderbilt to do this trial but I understand Baylor University has the most.

The benefits of this trial could be to avoid a mastectomy which was not the case for me but was told that at the beginning. The other benefit could be to avoid chemo.

I agreed to do the trial but only if I could receive chemo. I was not as well informed about HER2 as am I now and made this decision because the trial was so new and there was no long term information on what the impact could be of foregoing chemo. In addition, I have a friend who's father is a surgeon at a reputable hospital in another state. I faxed all the information on the trial and he consulted with breast cancer specialists there and that was the advice he would give his own daughter so that is what I went with. I was so overwhelmed I just wanted someone to tell me what to do.

I don't know if that was the right choice but I'm not going to second guess myself at this point.

I see a lot of posts regarding this combo with mets but was curious as to if there are any of you who did the same trial I did. If so,

--When did you complete the trial?
--What were your results?
--How are you doing?
--Did you receive chemo or did you do the Herceptin/Tykerb only?

Thanks so much.

Re: Clinical Trial for newly diagnosed -any others?
 

Bumping this one up.

Re: Clinical Trial for newly diagnosed -any others?
 

I started altto trial[ diff combinations of tykerb+herceptin as first line tx after diagnosis] may 09 after r mast 2-10-09. For the trail you do chemo first then you're combo draw. I drew tykerb 1500mg dly for 1 year. So far results unknown. Anyone else out there on trial or with any results? Best Cec!!

Clinical Trial for newly diagnosed any others
 

hello to all of you had new on the clinical trial of dr huang on the combination of cells Schwann OEG? guerdener

Re: Clinical Trial for newly diagnosed -any others?
 

I did the Altto trial after chemo and mastectomy. Got tyverb only for 1 yr. Cancer came back as soon as I stopped tyverb. Really wish I had had herceptin instead.

Re: Clinical Trial for newly diagnosed -any others?
 

I'm currently in arm 4 of the ALTTO trial which means taxotere, caroboplatin, & herceptin taken with Tykerb (3pills / 750mg) daily.