Re: How many years NED? Give others hope
 

5 years NED in December and so thankful for each and everyday
Pam

Re: How many years NED? Give others hope
 

18 years, stage III

Re: How many years NED? Give others hope
 

12 years this month

Re: How many years NED? Give others hope
 

I was dx Nov 2013 with IBC ..stage3c node positive. I had my last Pet/Ct Feb 20 ,2018 I still remain NED

Re: How many years NED? Give others hope
 

I'm 5 years out as of April of this year. Diagnosed in 2013. Such a life changing experience. Last year I donated my wig. I was afraid to let it go. Today, I put two pairs of prosthetic forms in the mail as a donation to a group that collects them.

So far, so good.

Re: How many years NED? Give others hope
 

4.5 years! So far, so good!

Carol Ann

Re: How many years NED? Give others hope
 

Originally diagnosed stage 1 in 1995.
After several recurrences, received my stage 4 diagnosis in December 2006.
11.5 years at stage 4. Currently on no treatments for the past 4 years.

Re: How many years NED? Give others hope
 

13 years here.

Karen Z

Re: How many years NED? Give others hope
 

just hit 13 yrs , from stage IIIC. Well and grateful every day!

Re: How many years NED? Give others hope
 

10 yrs Ned and doing well :)

Re: How many years NED? Give others hope
 

6 years NED - in December
Life is Good

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5 years since stage IV denovo dx, still in treatment but still here.

Re: How many years NED? Give others hope
 

Some people stories are really inspiring. Thanks for sharing and giving support and hope to others. I am from https://worldpostalcode.com/united-states/california/ and two of my friends have completely different results of treatment. But every single positive story deserves a lot of attention as it proves that every patient can hope for the same happy scenario.

Re: How many years NED? Give others hope
 

Going on 8 years NED

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17 years for me. I am humbled by everyone on this board every day

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Congrats Becky , so happy for you! Right behind you at 16 years ! Blessed and grateful everyday!

Re: How many years NED? Give others hope
 

Nov 19th I will be 8 years since diagnosis of stage 3c IBC , no recurrence

Re: How many years NED? Give others hope
 

8 years NED. Fingers and toes crossed. So nice to see everyone ��

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9yrs NEAD
new oncologist just suggested stopping Herceptin...anyone one else MBC and stopped. worried about a reoccurrence...

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22 years. Stage 3

Re: How many years NED? Give others hope
 

15 years for me. Stage 1.
Cancer found while undergoing a breast reduction.
Clean mammogram and ultrasound 3 months before that surgery.

Re: How many years NED? Give others hope
 

Hello everyone,

April 2022,
I'm a 16 year survivor! (two days)
I'm going to celebrate by working in my garden and then by having dinner with my family.
My daughters then: 9 year old is now in PA school, 6 yr old is now a senior in college and my 4 is now a sophomore in college. I'm immensely grateful for everyday and getting to see my girls grow and flourish.
I always think of the many courageous and caring supporters on this site, the survivors and the angels above!
Love to all of you!

Re: How many years NED? Give others hope
 

I am at 17.5 years. My school aged girls are grown and one is married. I am a grandma to a boy, Asher. I never thought I'd see this day. All I wanted was to live long enough for my girls to not be "messed up" from not having a mother. This site was my lifeline and helped me advocate for Herceptin of which I was not really eligible. I got it and maybe that's why I'm here. So grateful. Thank you Her2 friends

Re: How many years NED? Give others hope
 

It was December 24, 2004, and I was 48 years old when I received the news that would change my life forever. I was diagnosed with inflammatory breast cancer, a rare and aggressive form of breast cancer that was difficult to diagnose. My diagnosis was ER- PR- and Her2+++, stage 3C. When I searched on Google, I found out that the survival rate was only 5% in 5 years. I wasn’t devastated, I thought I’ve been lucky all my life and had more share than a lot of people in this world, so if it’s my time to leave, I would accept it gracefully but I’ll try my best to survive and fight it.
Before my diagnosis, I was the picture of health, climbing mountains, running marathons, and running my own successful IT business. But now, everything was different. They started me on a very aggressive chemotherapy regimen, hoping that I would respond to the treatment. The chemo was intense, with three types of chemo drugs given together every other week - usually they give these drugs in a period of one year, one at the time. Despite the side effects, I tried to keep up with my active lifestyle and went hiking every week until I couldn't do it anymore.
After three months of chemotherapy, I had surgery (mastectomy) and then started radiation. The doctor advised against removing my lymph nodes because it would cause problems for me due to my active lifestyle. I trusted his advice, even though other oncologists advised otherwise.
But the battle was not over yet. Herceptin, a new drug in clinical trials, showed promise in treating Her2 positive breast cancer, but it was only given to those in stage 4. I knew about Herceptin because I was a member of this site and even met Christine, the founder of Her2 group and many other beautiful members of this site. I asked my oncologist to give me Herceptin, but he was hesitant, not knowing if it would work for me. However, after attending a cancer conference, he called me and urged me to try Herceptin. I agreed and began a year of injections every week.
After my treatment with Herceptin, I felt grateful for my recovery and wanted to contribute to the fight against cancer. I participated in Phase one of the University of Washington Vaccine Clinical Trial for Breast Cancer HER2 positive. Many people told me it’s risky to participate in phase one, especially now that I didn’t have any sign of disease, but I felt it is my turn to pay it forward!
I was lucky to have a loving family, husband, son, daughter, and an army of relatives and friends who supported me throughout my journey. Science and time were on my side, but I also knew that active participation was key to solving any obstacle in life.
Today, I have been cancer-free for 18 years, and I know that there is always hope. With the help of science, community, and family support, I was able to live longer and healthier. My journey taught me that no matter how difficult life may get, there is always hope and a reason to keep fighting.
This June I’ll participate in Cancer Vaccine Institute – UW Medicine. It’s free for everyone if you are interested. For full details, visit https://www.uwcvi.org/post/join-the-...rcle-this-june

Re: How many years NED? Give others hope
 

As of yesterday I hit 10 year mark since diagnosis and I remain NED