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-   -   Sheila (https://her2support.org/vbulletin/showthread.php?t=14487)

JaneP 02-24-2004 01:00 AM

Where are you? I'm just north of Springfield!

Jane

janelle 07-11-2004 03:11 PM

Thanks for your help....

Lolly 08-30-2004 01:04 AM

Thank you Sheila, I'm hoping for the best!

Lolly 09-10-2004 03:28 PM

Sheila, feel free to e-mail me, lollyanna53@hotmail.com
Happy to answer any questions, but don't have your address to e-mail you!
Love, Lolly

Lolly 09-10-2004 03:28 PM

Sheila, feel free to e-mail me, lollyanna53@hotmail.com
Happy to answer any questions, but don't have your address to e-mail you!
Love, Lolly

JoJo 09-26-2004 02:04 AM

Hi Sheila,

Sorry to be going off-track -- but just wondering about your neck node.

How was your head MRI? Have you gotten your results yet?

Just thinking of you :-)

Bonnie 09-29-2004 12:13 PM

I didn't have too much difficulty. I was given benadryl, tylenol and the steroid (can't think of the name) before each infusion, along with Kytril for nausea. I never did get nauseated, but they gave me meds to take home in case I did. I really didn't like any food because I couldn't taste anything and I found out later it was probably from the steroids I took for a short time before and after treatment. I got thrush, again I understand from the steroids. I did loose my hair within 3 weeks of starting. My blood counts were low after the first infusion and I immediately got sick, flu-like. They gave me Aranesp for my red blood cells and Neulasta for the white blood cells and I never got sick again. I was very tired most of the time and slept alot but didn't have any pain. However, I did develope neuropathy in my hands and feet and it's still there, hopefully dimishing. They blamed that on Taxotere. My fingernails and toesnails lifted, too, but didn't come off completely...thank goodness. They are coming back slowly. They also said the was from Taxotere.

Within a couple of weeks of ending the carboplatin and taxotere I had overwhelming energy and it felt so wonderful after sleeping my life away during those months of treatment, and the energy stayed even during radiation. My hair is growing back, although it seems slower than I want. It is curly but didn't change color, which I would have liked since my hair is almost totally white. :o)

If you have any more questions, just ask and I'll try to answer from what I know.

Bonnie


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