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Brenda,

Wishing you the best of luck with this treatment that so many call "a miracle". Hoping forever NED for you:).. Please keep us posted

Lots of Love,
Laura

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Wish you all the best brenda

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Brenda, you are not only pioneer, but also beautiful woman!

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Go, Brenda, go! Hope you meet lots of other survivors on your trips!

A.A.

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Hi Brenda,

I'm so happy you posted. I come to her2support and always think of you and wonder how you are doing.

Praying all goes well but thankful you have found yet another option for you.

Blessings and much love,

Mary Jo

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Crap on a crapstick... ECHO and MUGA came back too low (45%) to start TDM1 tomorrow. Will make an appt with a Cardiologist for early next week and possibly start Coreg and Linisopril, as well as diligent appropriate exercise, no alcohol/no caffeine, low sodium, and CoQ10... and hope for nice recovery of over 50% in the next 2-3 weeks. It's always something!

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Good luck Brenda, I hope that your heart scores go up quickly so you can start TDM1 as soon as possible.

all the best
caya

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Are you in Denver right now? I wondered if the altitude had affected the MUGA score. Hope it improves soon.

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Well Brenda, you know what I think about it...

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That crapstick is getting awfully FULL!
Time to get a new one?

Sorry about the MUGA. There always seems to be some area of our body that wants special attention. Give that heart what it needs and it will respond, just like your brain and other "places in need."

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I am sorry Brenda. I hope the meds and a healthy diet get your LVF up and over 50 in the next week weeks, so you can start T DM1 then.

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Thanks my friends... yes, I may be in the market for a new crapstick, Steph.

Jackie, I am in Austin. All of my scans are being done here, just treatment in Denver. So, I have canceled my plans to fly there in the morning. Will try again in 3 weeks.

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I plan to be re-ECHOed/or/MUGAed in 3 weeks, after doing all the stuff listed above to help increase my percentages, and continuing them so that I can stay in trial. I wish it were just the wonkiness of my MUGA, but it matched the exact % of my ECHO that was done 7 days prior, so I think it is probably correct...

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I think that walking or hiking everyday makes a huge difference. CoQ10 will also help. The omega vitamins, too. I am sending good hearts to you!!! xo Flori

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Brenda;
Rats, rats, rats. I am really hoping the exercise and COQ10 will bring the EVF to 50. I'm passing along my best wishes and prayers that you'll get to those levels in 3 weeks. All my exercising I will pass along to you as support. I wish I could virtually give it to your heart.
Hugs,
Kris....

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Hey Brenda,
Thinking of you today. Let me know when you're free. Ayden goes to Disney World for spring break.....maybe then? You're the best! ma

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Brenda:
Damn it! If it's not this, it's that! That's how cancer likes to roll. I hate this setback for you after having so much invested in getting into the TDM1 trial.

I will keep a vigil of good vibes for your ticker to improve asap.

I'm on hold for my last dose of TDM1 due to low platelets. Hope to get back on track next Wednesday.

If anyone has some extra platelets they are not using, could you send them my way!!!

Sending my best and looking forward to sharing TDM1 experiences with you SOON!!!!

Darlene

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ARGGGHHHHH!!!!

Brenda,just wanted to let you know I have come up with a mantra I'll be using on your behalf..EF 60...EF 60...EF 60...