Rest in peace, Mandamoo.
 

Our brave and beloved Amanda has died. The ripples from her indomitable spirit and her devotion to her family will truly be felt all around the world.
So much grief.....
Pam

Re: Rest in peace, Mandamoo.
 

Nooooooooo!

Re: Rest in peace, Mandamoo.
 

My heart is so, so sad reading this..... I hope and pray that Amanda was not in pain, and was at peace. I feel numb and I'm not sure what to write now other than love and peace to you all, and especially to Amanda's family.
Marie

Re: Rest in peace, Mandamoo.
 

Oh no! Too soon! I am devastated. My condolences to her family and friends.

Re: Rest in peace, Mandamoo.
 

Noooo! I can't find any words

Re: Rest in peace, Mandamoo.
 

This is just too soon, Amanda didn't get to see her son in his new school uniform. I hope she wasn't in pain, with her coughing. She was so dedicated to her family, I offer them my condolences.

Dawn. Xx

Re: Rest in peace, Mandamoo.
 

So sorry to hear about Mandamoo's passing.

all the best
caya

Re: Rest in peace, Mandamoo.
 

Rotten, rotten, rotten, news. I so enjoyed her posts and admired her so much. Prayers for her family.

- Penny

Re: Rest in peace, Mandamoo.
 

I'm so shocked and sad to hear about her passing! It happened too early and too fast ! Amanda was such a sweet person. Rest in peace !

Re: Rest in peace, Mandamoo.
 

Thanks to the Downunder girls for sticking together and letting us know.
I felt that she was getting the best she could in the way of treatment.

Just so sorry that she has to leave her family at such a young age. My very deep condolences to them all.

Re: Rest in peace, Mandamoo.
 

Re: Rest in peace, Mandamoo.
 

I came home from a fab holiday last night to be confronted with this. I am devastated, to say the least, as she was such a beautiful person with time for all. I was planning on visiting her on my return. So quick as she only went to hospital and decided to stop treatment on September 24th. I know this date as she was meant to be with us on that day.
Dawny i am not sure if Amanda was changing her son's school, but she definitely saw him in uniform to start prep at school.
This is part of my post on the BCAUS forum i have been on since 2006.

Janine(founder) posted this quote re forum angels and i think it sums her up really well.

These are not women who succumbed or lost their battle. These are the women who teach us how to give, how to love and how to live; whose spirit is indomitable and their presence, in life and in their passing, is electric. For this we celebrate them. -- Tamar Paluch

She is to be celebrated greatly for being her, which was a beautiful person who fought hard to stay for her young family. Condolences to Brendan and her three lovely children.
Amanda will be greatly missed by those who knew her. xo
RIP Amanda


I am so sad i didn't get to see her. xo

Re: Rest in peace, Mandamoo.
 

And more....
StephN, she tried Havalen as her last treatment but began to feel really unwell. This is when she went to hospital and was told if she kept up treatment she would die sooner.
This is a post she put 5th October when i asked after her well being:

I'm ok. Mainly just spending time sitting in my chair in our lovely front room. Quite a few visitors from Qld. I deteriorated quite a bit when I first got home but past couple of days have been better. I am very breathless on exertion and can no longer walk upstairs to my bedroom so we have moved into our spare room downstairs. The home care nurses have visited and will come twice a week to check my symptom management. I have a stool for the shower as I was exhausted standing and yesterday an oxygen converter arrived which I don't really need yet but just in case. I have my appetite back which is a nice feeling as eating gives me strength. I am living in blissful denial saving my energy, knitting, reading, writing, chatting.


A friend (who is having her 50th tonight!) rang her on Wednesday and she was coughing a lot. She and all of us are just so shocked by the suddenness.

I held Amanda in high regard for her extensive knowledge of this horrible disease. Unfortunately here in Oz we aren't up to you in trials etc. Amanda didn't want to waste time with her family(going overseas) to buy a bit more time even tho she had a very aggressive disease.
Thank you Amanda for the time you spent discussing my disease with me and for being such a positive influence.

Re: Rest in peace, Mandamoo.
 

This is such a shock. I am so down. I just cant accept Amanda is gone. My thoughts go to her family and friends. Michka

Re: Rest in peace, Mandamoo.
 

Crap on a crapstick. Really a shock.

Thanks, Christine, for the info. Just glad she was at home with her family and friends

Re: Rest in peace, Mandamoo.
 

So shocked, just can't believe it. Sincere condolences to her family. My heart goes out to her children. We are losing way too many young women to this horrible disease!
Ellie

Re: Rest in peace, Mandamoo.
 

Thanks Christine for the info. I still can't believe she is gone so soon. NEDenise and i were just discussing a card shower for her. I am so sad for her dearly loved family

Re: Rest in peace, Mandamoo.
 

Such devastating news. Such a quick demise - I guess on the one hand is good but so hard for all (including us) to come to terms with.

I will miss Amanda and her intelligence and heart so very much.

RIP

Re: Rest in peace, Mandamoo.
 

I am so saddened to hear this news. I enjoyed her spirit, her wit and her stories of her family. My condolences to her family and friends

Re: Rest in peace, Mandamoo.
 

Oh, no. My heart is breaking.

She was so young. I'm so sorry for her husband and children.

Hold your loved ones closer today--and every day.

Re: Rest in peace, Mandamoo.
 

I read this last night and just couldn't respond. I've been thinking about her since I got up. I just hurt so bad for her family that lost her way to soon. I have kids about the same age as hers and I am so saddened for them her hubby and family.
If optimism and hope could cure cancer she would still be with us now.
Christine thank you for sharing with us.
Rest in peace dear sister

Re: Rest in peace, Mandamoo.
 

This is so sad. Amanda was such a sweet person and I didn't realize she was at this point in the road. I hate this disease because it is taking such a toll. I wish we didn't have another Angel looking over us.

Peace and love to Amanda's family.

Re: Rest in peace, Mandamoo.
 

I am sorry to read this about Amanda....she is way too young. I am so sick of this disease and the toll it takes on all of our lives. May she rest in peace. Ceesun

Re: Rest in peace, Mandamoo.
 

I haven't been able to respond because this is just so devastating. I had e-mailed her and she had said she was in palliative care, but really, this was Amanda, she always kept going. Totally shocking. My sincere condolences to her husband and beautiful children.

Re: Rest in peace, Mandamoo.
 

It is hard to post, this is truly so sad. Modern medicine, modern cancer research didn't have the answers. Amanda had amazing doctors, and was very knowledgeable about her cancer. She had everything to live for, and clearly wanted to. She tried 9 treatments and every treatment failed her.

She was beaten by cancer and wanted to spend the time she had enjoying her family. It breaks my heart. We all wanted her to be well and to have many, many more years with her family.

Re: Rest in peace, Mandamoo.
 

So very sad to read this, may she RIP and so sorry we have lost yet another member but perhaps gained an Angel! xx

Re: Rest in peace, Mandamoo.
 

This news really shook me. It took a toll on me. I corresponded with her as we had the same stage. I am so saddened by this and so angry. Angry because those beautiful children are not going to have their Mommy anymore. You're in my prayers Amanda.

Re: Rest in peace, Mandamoo.
 

I am so saddened by this. Amanda seemed so sweet and it is hard to deal with the loss of another. My condolences to her family. Hugs to Heaven.

Re: Rest in peace, Mandamoo.
 

I feel so sad to read yet another dear sister is lost to us.

Re: Rest in peace, Mandamoo.
 

I cried. I also resolved to pay more attention to what's going on with group members. Amanda was important to me, and my absence from the board meant I didn't have a chance to tell her that. She set a wonderful example of loving, attentive support for others. In her honor, I will follow that example.

Re: Rest in peace, Mandamoo.
 

Rest in peace, Amanda.

Re: Rest in peace, Mandamoo.
 

What Amy said.

I'm so sorry that you're gone, Amanda.

Re: Rest in peace, Mandamoo.
 

So sad,

This is not right. Wished I could have met Amanda. Reading on this board she inspired so many. Thinking of her family and I am sure they must be so proud of her.

Janie

Re: Rest in peace, Mandamoo.
 

In her last email to me on 9/25, Amanda said she "could not believe this was happening," and that she "felt like she failed." To that I say, "No, dear Amanda, you DID not fail, the drugs FAILED you."

Drug companies, governments (especially foreign governments), policymakers, law-passers, as you drop in here from time to time, know that we have just lost a great friend and mother AGAIN, and you need to work harder, more diligently, and more in the interest of humanity than you are. Let the drugs cross your borders. Give patients a chance at what they want!

Karen

Re: Rest in peace, Mandamoo.
 

this is very sad. my condolences to her family and friends.
hugs and love
sarah

Re: Rest in peace, Mandamoo.
 

NOOOOOOOOOOOOOOOOO!

In her last email to me (10/7) Amanda wrote of how hard she has tried (with what is available in Australia re genomic profiling). The cost of testing in US with all that would entail she said would exceed $15,000. She said she has more than 50 tumors each with their own profile that responds differently to tx.

She promised me she was trying to boost her immune system. She was very, very weak.

Her emails were getting shorter and shorter.

Full of love, Amanda always wrote, Thanks so much, Andi.

She had no doubt that some further possibilities would be available if she lived in the US. Phase 1 and 2 trails in Australia are limited and unfortunately she'd never responded to her HER2 tx. She remained hopeful that resting and recuperating will help her, however, her breathing and exercise capability was undeniably diminishing. She wrote, I WILL NEVER GIVE UP HOPING THOUGH. And again, she added, Thank you for caring. Amanda XX

My package to her has likely not yet arrived...

I just wrote to her earlier, because she hadn't responded to my last email, which she always does. I wanted permission to post her address, as some have PMd me, wanting to reach out to her, to shower her with cards.

Well, we can send our love to her beloved family!

Only yesterday, I saw a beautiful photo of Amanda on FB that a dear friend had taken. Her strength of Spirit shone!

AMANDA RYNNE
6 Killarra Avenue
Camberwell
Victoria 3124
AUSTRALIA

I am writing Amanda's name down in purple ink. I plan to touch it and close my eyes and send her my fervent love and blessings. I feel certain you will receive this energy. I will see her on the other side. Where we can hug and hold hands and dance, floating weightlessly with the joy of meeting. I smile dreaming of this...

Heartbroken! Shocked. Shaken to the core! Impossible. No one could have fought more!

Andi

Re: Rest in peace, Mandamoo.
 

So sorry to read this news...jeez, so sad.

Re: Rest in peace, Mandamoo.
 

Very very sorry to read of Amanda's passing. The angels have just had another sweet new arrival...

Re: Rest in peace, Mandamoo.
 

This is terrible news indeed. My heart goes out to her young family.

Re: Rest in peace, Mandamoo.
 

Unbelievable. I can't get my mind around the idea that she's gone. So young, so energetic and athletic, such a fighter, so full of life and hope.
Damn this brutal, evil, f*cking disease. :-(