Results of Taxol, T-DM1 and Pertuzumab Trial
 

Dear Friends,
I have not posted in some time, in part because all of you--in some way, shape or form--have made an impact on me or the way I make decisions about my disease. And in some way, each of you have become special to me in some way. I feel when you are down and I relish in your success.

It seems that recently we've had our share of downs on the list and it never seemed appropriate to me that I would shout from the rooftop how well my trial was working, even if it gave hope to some. It's just not my nature. But today, with my second scan confirming it, the HER2 disease is dead with Taxol, T-DM1 and Pertuzumab. It was so on the first cycle. I needed to wait six more weeks for another scan before I came here report on this new drug. I, too, have been let down many times, and it's easy to be gun-shy.

We have dropped the Taxol and will continue on the T-DM1 and Pertuzumab indefinitely. Taxol was never in the long-term plan. It was not easy using all the drugs at once, but it did the job. Please do not give up hope. We may have something right now in our community, Pertuzumab, that will change how we treat this disease forever. Combine that with each new day, a new chance, and I think we are moving in the right direction.
May this last for me, and be an answer for all of you as well.
Love
Karen

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen,

May you remain NED now until 120 yrs as they say! You are SUCH an inspiration (I know you hate bold , but wanted to make the impact..LOL).
Your success is OUR success, and you are giving us all hope that we can defeat this horrible disease.

Love you
ur friend - Laura

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Remarkable and wonderful news! Thank you for taking time to share. ma

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Never ever feel you can't shout your news from the rooftops here on this board. We too mull the bad news over and rejoice in the good news.

You are a pioneer woman and have shown us this new combo that in the future, may do this same wonderful job on others that it has on you. I am so happy for you.

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

I agree with Becky...we need to share both the good and the not so good news.

So happy you have gotten such quick, and strong results! You'll look great in another 120 years!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Such fabulous news, and I hope you stay NED forever. It gives us all hope when you post great results like this!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen,

Thank you for sharing the great news! It brings so much hope to so many.

Never hesitate to share whatever that's going on in your life/treatment - good or bad. It is what we are here for - sharing and supporting each other.

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

I am doing a happy dance for you !!!!!!!!!! Congratulations on a job well done.
I heard from some pretty reliable sources that Petuzamab has a good chance to be approved by the FDA in June. Let's keep our fingers crossed for that one.

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Wonderful news. You're more than entitled to shout from the rooftops--a happy dance would not be amiss.

Even though I've not interacted with everyone who posts here, I do follow all of you, and I hope my heart out for good outcomes. Reading your post made *me* feel like dancing.

Congratulations and best wishes for a very long-term relationship with NED.

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Congratulations - I love to hear the good news long may it continue xx

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

karen, such great news, oh it needs to be shouted!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Wonderful news. Just what we needed to hear. I agree that at present many are struggling but your good news is a boost for all.
Hugs
Ellie

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen I am so happy for you and happy for all of us. It gives us hope. We are all dancing on the rooftop with you! Michka

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen,
I am so happy for you.
what wonderful news! It does help bring hope to everyone.

I hope NED sticks around for a long, long time


Laurie

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Great news! now let's get it as a standard treatment worldwide!!!
love sarah

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Excellent news.

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Wonderful, wonderful news for all of us! As the other ladies have said, we need to share the good and the not so good news. That is what Christine would want us to do. It helps us all to keep going and hoping.
Continued success with NED and let's hope this becomes an option for all of us in the near future.
Best regards,
Emelie
PS-Thank you for being such a brave women!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Oh, Yes! Yes! Yes! Congrats, Ceesun

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen,
Yay! Hooray! I'm so glad you posted! I've secretly been getting more and more worried when you didn't post any news. But you're in my prayers every single day!
You go girl! Blaze that trail!
You really are giving hope to so many of us, that a cure is on the horizon...just beyond our grasp...but not for long!
Be well, my friend!!
Love and hugs
Denise

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen, Wonderful news about the trial!! May you be NED forever ... Many hugs, Joan

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Darn, Karen, upon reading this I feel it incumbent upon me to toast your success! Now where is that nice bottle of Merlot? Hope someone else posts some good news for me to toast with a second glass!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen - that is so wonderful! here's to continued dancing with NED.
You have always been a light to me - thank you. Blazing the way ahead - thank you.
Love and light and peace Amanda x

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen~
Congratulations & CELEBRATE!
Effective treatment for any one of us is victory for all of us!

Can't wait for that TDM1 & Pertuzumab to get approved -
waiting with baited breath!

So happy for you~

Jessica

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen...wonderful news...we all celebrate with you....I am hoping to be able to try the Pertuzamab in the future, since TDM-1 didnt do it for me! Hoping to try the combo....hoping NED hangs around for a long time for you
~~~

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen, your joy has brought much joy to this board. This is the best news, and thanks so much for being one of the pioneers.
Best wishes for NED for ever
Marie

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Great news, Karen!!! May you remain NED forever !!! I hope at least FDA will approve that one drug Pertuzumab in June. Tdm-1 seems to have brought miracles to so many! Hopefully this regime will get approved soon too!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen, I am THRILLED for you- I hope you dance with NED forever...

all the best
caya

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Thank you Karen for posting your wonderful news!!!!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

What could be better news?! Congrats, So excellent to have another sister NED. Scream as loud as you want, its' terrific news.
Keep us posted.

Woo Hoo..........

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Oh Karen...oh Karen....this is fabulous news!! Thank you, Lord!! I am so happy for you and your family!

Maureen

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Great news Karen,
thanks for sharing. You give hope to many XD

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Karen, I am so glad to hear your good news.

Amelia

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Thank you all!
I, too, hope it lasts for a good, long time! Come on, June, we have a lot of people waiting!
Love
Karen (who's "gonna be good" and who believes in The Cure)

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Fantastic news, thanks for sharing with us, and going on trial, of course
Dawn

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

wonderful news happy for you, never hesistate to share and Continue!

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Shout out loud, and we'll shout with you! Hurray!

Hope your success continues and your continue to pave the way for many more.

Re: Results of Taxol, T-DM1 and Pertuzumab Trial
 

Dear Karen,

I am so happy for you and happy that this new drug may help so many others in the future. Thanks for sharing the details.

Hugs,