Tiger-Lilyecuadorian
 

Just wondering how you are doing Lily. I hope and pray you are well. I hope your family is well and enjoying the summer. Thoughts and prayers, Bill

Hey Lily,

I've been thinking of you too, and wondering if you were able to get an appointment with Dr. K. Hope all is well.

Thanks Bill and Sassy. After the failure of the Navelbine two small lesion developed in my liver resulting six total. Because of my old insurance we weren't able to get anywhere with any procedures. Fortunately my dear husband get new insurance with his BC/BS of NC. With that I got approval for SIR Sphere. That cost 100g's. At the same time I'm waiting for approval for "Leukocyte Infusion Therapy" (LIFT). Already I submitted and waiting for response. It's taking a little time because it's a new trial and there is red tape to go through. They don't realize, or maybe they do, that I don't have time to wait. I've spoken with these people and they are nice. They've gotten allot of response from different places. So, it's hopeful.
Now, since I got the news that I'm approved for the SIR sphere I'm going to Disney World! Really! My family and I are meeting more family in Orlando. The SIR Sphere starts on July 30th. Last week my tumor markers was stable from the previous (4 weeks ago) check.
Sassy - I want to note that the new Onc was more supportive of the trial at Wake forest (LIFT) and the SIR Sphere. The down side, I'm only on Femara and that makes me a little on edge. I want to get started! I've haven't posted lately about me because I didn't have any good news to share.

Lilly,

You are always in my mind and prayers. Do not stop writing. Great you are seeing your family in Florida. Have faith, I am sure things will work out for you. I am so happy you have been approved for the SIR Sphere.

Looking forward to hearing from you!!

Paty

Way To Go Girl!!
 

I am so glad you got a new Onc. I am sending positive vibes your way !

Kim

so good to hear it all
 

News!
 

Hi Lily,
It's really important to post when you are worried or when your treatments are not going so well. That is when you need the most support. I had to wait months to get into the H-DM1 trial and was really progressing by the time I started. It has been working for me and I noticed results within two days. I hope that this new trial will work for you and you will have positive results.

In addition, I feel that it is helpful to your body when you have a break from all this chemo even if it means that you may progress a little. Remember, while we may all have HER2 breast cancer, it is still an number of different diseases in the breast. You just need to find the right combo for you.

Enjoy that wonderful trip to Disney, and try to put all your cancer worries behind you while you are away.

Best wishes and thinking of you,

Barbara H.

Lily,

I hope you have a great vacation. You will be in my prayers. I am really interested in hearing about your new treatment.

Amelia

Thank you, Bill, for checking on Lily.

Thank you, Lily, for giving us updates.

Beautiful photo Bill,

Have a great holiday Lily.

Lily, good to hear news about you--have been wondering how you are doing. You always have a sweet word for everyone on here. I hope the spheres does a terrific job on helping your liver get better. I have seen you with 2 children in 1 of your pics--they must be delighted about going to Disney World. I know it is hard to face progression of the mets, new treatments, the tests, and on and on. I have tests next week to see if the ixempra is working. Stay brave dear sister, many care, many pray for you. Becca

Best of luck to you with your treatment and have a
wonderful trip to Disney. Keep us posted. My healing
thoughts are headed your way.
patb

Lily, enjoy your vacation and remember you are in our prayers. Good luck with the new treatment.

Lilly,

I'm happy that you've been accepted for the trial.

Enjoy your vacation in Florida!

Joan

Lily,

I am so happy that you got accepted into the Sir Sphere. I am praying that the treatment will be the magic bullet for you. Know that we are thinking of you and wishing you well.
Enjoy Disney with your family.

all the best
caya

So glad to see you post. You have been in my thoughts. I'll be praying you get great results from your new treatment plan.

Have fun with the family on your trip.

Tonya

Lily,
Wishing you all the best on your upcoming treatment.
Have a wonderful time at Disney World!! Yes!!
Also Lily, we would all love to hear from you....good news, bad news, no news,......whatever your heart and mind might be in the mood for....we welcome it all. 24/7.
Maryanne

Don't despair Lily - We are here for you. You'll see your doc tomorrow and hopefully a new plan will unfold.
Please know that I am praying for you.

all the best
caya

Hi Lily
I am so sorry that you're having these issues to deal with.
Please remember Jean's "Sister's" poem

the women in your life
will be on the valley's rim, cheering you on,
praying for you, pulling for you, intervening on
your behalf, and waiting with open arms at the
valley's end.
Sometimes, they will even break the rules and walk
beside you...or come in and you carry you out.

And you've also got your special brothers - Lee, Bill, Doug, Eric and RB. As Caya said, we are all here for you.

Lily I am praying that when you see the doc tomorrow that things work out for you. In the meantime I know we all want to live as normal a life as possible and make things normal for our families, such as vacations etc., but we all have to remember that we are the ones fighting and when we have trouble we have to be a little selfish and take care of ourselves. Keep up the fight girl!

Dear Lily

I just wanted to let you know that I am rooting for you, not from the sidelines but beside you.

Keep thinking only the best thoughts and know that there are so many options left out there to get you into the remission you deserve.

Love,

Lily, you are such a strong warrior-woman, a true tiger and an amazing fighter, always thinking of your family and love ones before yourself. What an awesome inspiration to others here that you are. You are always in our thoughts and prayers. It really is ok, though, to let your family know when you are not feeling well. I know you are a self-less person, but at times, you need to think of yourself, and what you really need. You will be in my prayers, Lily. Peace and relief to you, Bill

Lily,

We are all right here with you. I am praying that your doc (is it Dr. K?) will give you some relief and new meds will bring you to remission.

Stay the strong and lovely Lily!

Dear Lily
 

Lily,

Just wanted to check how you are feeling today.

Well , I went to my doc (who is so great and nice) he told 2 news one good one" and one badone" the #1 is no in another place the #2 is incresive agressive on the liver ...so he call my doc for sir spheres and he thinking that he still want it to do it ..for these 8 more days will be start AI's and quit femara ....the pain that I used to have was only cause by femara ...now I'have no pain ...that was the results for a pet scan ..My doc is going to push to move forward with date for the sir sphere's , thanks for everything !!!love you ....ALL

just have someone keep us updated and i'll keep you in my prayers.

Lilly I am glad that you got some good news at least. It's good to know that you are more comfortable with your new doc. I hope they get you started on something new that knocks these liver mets out. They are a scary thing to go through. Keep the spirits up and you will be in my prayers.

Lily
You are in my thoughts and prayers that you will be able to get the treatment quickly, and get rid of the nastys that want to take up housekeeping in your liver....remember, we are all here for you, and with you in this struggle...you are an inspiration, to all who know you.....

Dear Lily,
You are in my thoughts and prayers. We will fight this disease. We'll keep our Faith.

My love to you,
Gemma

Lilly, I'm sure that the sir spheres will help control the mets in your liver. I'm praying that you have the procedure soon. God bless, Joan