12 Years and Stage IV - No sign of my cancer
 

Hello everyone -

I also got good news today. So will add mine to the others posting of late.

It was January of 2002 that my diagnosis upped itself from stage II to IV. Thus I am looking back on a much longer trail of years than I ever thought possible on that dull January day when my med onc announced my elevated CA 27-29 levels and I told him about my side ache.

The only thing I need to work on is improving my DEXA scan scores and hope that taking more calcium will make a difference. Perhaps I will go back on one of the infused or injectable bone hardners by summer.

Re: 12 Years and Stage IV - No sign of my cancer
 

Thank you for posting this! All you women who still support those early in treatment is inspiring. Thank you!!

Re: 12 Years and Stage IV - No sign of my cancer
 

That is great news Steph!!! I had good success with Forteo (injectable) for my severe osteoporosis. 18% gain in bone mass after 2 years. I saw Dr. Julie Carkin, Seattle Radiology. She was terrific!

Re: 12 Years and Stage IV - No sign of my cancer
 

Hooray for you!

Re: 12 Years and Stage IV - No sign of my cancer
 

Way to go Steph! You are an inspiration.
Cheers Marie

Re: 12 Years and Stage IV - No sign of my cancer
 

Whoo Hooo Steph!

Lead on Mighty Warrior!

Thanks for being such a strong source of Hope and support for all.

Re: 12 Years and Stage IV - No sign of my cancer
 

I am so happy for you my dear friend and also for the great inspiration you are to all of us!

Re: 12 Years and Stage IV - No sign of my cancer
 

Bravo! Bravo! I love this post Steph!

Re: 12 Years and Stage IV - No sign of my cancer
 

I am so glad to log on and see all these good news postings. Continued good health to you. You are an inspiration.

Re: 12 Years and Stage IV - No sign of my cancer
 

I never get tired of hearing such great news, I wish you many more years NED. Just fantastic news. Congrats.

Re: 12 Years and Stage IV - No sign of my cancer
 

Way to go Steph. You are an inspiration to all of us and one of my personal heroes on this board.

I had good luck with my bones with Zometa and getting my vitamin D in line to over 60. Seemed everything turned around after that.

Love and hugs

Re: 12 Years and Stage IV - No sign of my cancer
 

Great news Steph! Keep those years coming!

all the best
caya

Re: 12 Years and Stage IV - No sign of my cancer
 

Amazing!!!!

Re: 12 Years and Stage IV - No sign of my cancer
 

I love you, Steph! You are The Champ! I want to do this! I will!



Yippee & Hugs,
Karen

Re: 12 Years and Stage IV - No sign of my cancer
 

Echoing everyone else! Great news

Re: 12 Years and Stage IV - No sign of my cancer
 

Well done, Steph! Best of luck for many, many more years NED.

Hopeful

Re: 12 Years and Stage IV - No sign of my cancer
 

Happy for you! Wishing you continued NED and many many years of joyful living.

Re: 12 Years and Stage IV - No sign of my cancer
 

Wonderful, inspiring news, Steph!

Re: 12 Years and Stage IV - No sign of my cancer
 

Steph,

Thank you so much for posting this, and for your continued care and support. Your presence is truly a blessing.

Re: 12 Years and Stage IV - No sign of my cancer
 

Wow thats wonderful news Steph and I'm so glad to share in your happy news!!:)

I have a once yearly iv of Zometa for twenty minutes which has turned my osteopenia around thankfully!

Re: 12 Years and Stage IV - No sign of my cancer
 

Thanks for always keeping us informed and providing us with much needed hope!

Re: 12 Years and Stage IV - No sign of my cancer
 

Yipee, Steph, you're encouraging!

Re: 12 Years and Stage IV - No sign of my cancer
 

Love your happy news, Steph! Love you too... So proud of you.

ANDI

Re: 12 Years and Stage IV - No sign of my cancer
 

Steph..you are a rockstar!!! So happy for you!

Re: 12 Years and Stage IV - No sign of my cancer
 

Thank you for this post! So happy for you and it gives me hope for my mom who is 6 months out of treatment and on Herceptin and hormones.

Re: 12 Years and Stage IV - No sign of my cancer
 

Thank you so much for your hope and inspiration, Steph!

Love,

Caroline

Re: 12 Years and Stage IV - No sign of my cancer
 

Wonderful News Steph! You are amazing and such an inspiration for all of us! Thank you!!

Carol Ann

Re: 12 Years and Stage IV - No sign of my cancer
 

Truly wonderful to hear...Huge blessings to you!! :)

Re: 12 Years and Stage IV - No sign of my cancer
 

Cool Beans, Steph! It is always so good to hear happy news like yours. Raising my glass and toasting you with: Here's to the next 12!

Re: 12 Years and Stage IV - No sign of my cancer
 

You are who I want to be when I grow up. I have liver mets too. After half my liver removed, they grew back. After 7 chemos, they kept growing. It took the combination of perjeta and gamma knife to do it, but now I am stable, with cancer seen but no activity. I've been off chemo since last summer. On perjeta and herceptin only. I feel fantastic.

I would love for this to go on for 12 years or more. You make me know that it is possible. I'm starting to live like a "normal" person again, not talking about cancer all the time, feeling like I have a future.....but I always felt that was temporary. You give me hope. Maybe we are outliers but what a beautiful place to be!

Congratulations!

Re: 12 Years and Stage IV - No sign of my cancer
 

I was glad to log on and see your great news Steph!! Congratulations!! You are an inspiration and help to give me hope!
Hugs,
Kelly S. (Kansas)

Re: 12 Years and Stage IV - No sign of my cancer
 

XOXO!!!
You are " keep the faith" in action!

Re: 12 Years and Stage IV - No sign of my cancer
 

Congratulations! The best kinda news we all love to read. Wishing you continued NED status for decades to come.

hugs,
shobha

Re: 12 Years and Stage IV - No sign of my cancer
 

AWESOME! You go Girl!

Re: 12 Years and Stage IV - No sign of my cancer
 

Sooo happy for you Steph! Congrats and best wishes for continued wellness always!
Hugs & prayers,
Joanne

Re: 12 Years and Stage IV - No sign of my cancer
 

Yeah Steph! So happy for the good news.

Re: 12 Years and Stage IV - No sign of my cancer
 

Hi StephN,

Looking forward to many more, and I'm with you as a stage I NED.

I've always wished that a trial would be designed around those who have been in remission for very long times, to find out what our characteristics are, to use to tease out histories and physical aspects that could be helpful to others. Any chance any oncs/researchers might be willing to take that challenge on?

A.A.

Re: 12 Years and Stage IV - No sign of my cancer
 

Thanks, everyone. I wish for you all to have the same long results I have had. It has not always been a easy road and "something" seems to come up every couple of years as a health concern that I have to deal with. (Ha! The downside of fighting to stay alive...)

A.A. - I have heard talk of a survey of stage IV types who have been able to stay stable/NED for years either staying on Herceptin or going off of it. But, nothing concrete. I would hope some entity would get around to it!

Re: 12 Years and Stage IV - No sign of my cancer
 

Steph,
How wonderful, so thrilled to read your post of 12 years.
You are my Hero.
Continued Blessings.
jean

Re: 12 Years and Stage IV - No sign of my cancer
 

Steph, Let me chime in to say how happy I am to read this wonderful news! I always look to your posts for guidance and inspiration...thank you for that as well! Ceesun