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-   -   I'm NED (https://her2support.org/vbulletin/showthread.php?t=61342)

CoolBreeze 06-20-2014 07:56 PM

I'm NED
 
Five years with cancer, 3 years with mets, 7 different chemos, a liver resection, SBRT radiation, sepsis and cdiff, and Perjeta and Herceptin.....and Perjeta/Herceptin did it.

I had a PET last August that showed the cancer was stable, and I had a PET this month that shows no signs of disease. It is due to the miracle drug, perjeta.

If it can happen to me, it can happen to you!

I never thought it would, but here I am. NED.

In a year, if I'm still NED, he may even take me off the Herceptin/Perjeta. There is no evidence of what happens with long-term use - although it's an easy drug to take it does act on your cells and who knows? That makes me happy and nervous at the same time.

I'm very happy and I wish the same for you all.

I am left with some pain from all the surgeries and treatments I've had, but I can certainly live with that! I feel like a miracle happened.

*hugs* to all of you.

Nurse4u2day 06-20-2014 08:05 PM

Re: I'm NED
 
CoolBreeze Congrats on the NED. What wonderful news. NED is possible even when it seems like it's not . I'm sure there are a lot of ladies on here that you are giving hope to.

caya 06-20-2014 08:06 PM

Re: I'm NED
 
Thrilled for you Ann! Amazing to hear that you are NED after all your struggles, I hope your dance with NED lasts for years and years and years!!!

all the best
caya

Kathy T 06-20-2014 08:20 PM

Re: I'm NED
 
Wonderful news, Ann. I am now on Herceptin and Perjeta after experiencing difficulties with TDM-1. I hope for the same results!
Kathy T

roz123 06-20-2014 08:45 PM

Re: I'm NED
 
wow so amazing Ann
the best news !

Bunty 06-20-2014 09:34 PM

Re: I'm NED
 
Anne, that is amazing news! So happy for you, and let's hope Perjeta/Herceptin will prove to be effective for many more.
Cheers Marie

Becky 06-20-2014 09:38 PM

Re: I'm NED
 
Oh, oh, oh!!! I am so happy for you. Thrilled beyond belief.

Pray 06-20-2014 09:57 PM

Re: I'm NED
 
Definitely a miracle! Priceless. I'm so unbelievably happy for you and your family! Gods blessings to you and yours��

Pamelamary 06-21-2014 12:32 AM

Re: I'm NED
 
Wonderful news! You really deserved a break. Hooray for Perjeta, and may your dalliance with NED be a long one.
Best wishes.... Pam

michka 06-21-2014 12:58 AM

Re: I'm NED
 
This is wonderful news Ann! I am soooo happy!

BonnieR 06-21-2014 01:08 AM

Re: I'm NED
 
I am SO happy for you! So deserved! You plugged away and kept the faith and here you are, celebrating! Us too!

jaykay 06-21-2014 06:16 AM

Re: I'm NED
 
You found your magic bullet! So happy for you !

Redwolf8812 06-21-2014 06:26 AM

Re: I'm NED
 
A miracle indeed. So happy to hear this news! Thank You, Lord!

:-) Penny

Carol Ann 06-21-2014 08:50 AM

Re: I'm NED
 
So thrilled and happy for you, Ann!!

Carol Ann

DianaMK 06-21-2014 09:37 AM

Re: I'm NED
 
Awesome!!!! So happy for you!!!

'lizbeth 06-21-2014 12:01 PM

Re: I'm NED
 
Amazing news Ann! I suspected you could be NED - if the correct treatment became available, and it did. I am beyond thrilled that Perjeta was your miracle.

I hope that many more ladies with advanced cancers will start enoying NED.

Maybe you've started a new trend!

Congratulations.

tricia keegan 06-21-2014 12:03 PM

Re: I'm NED
 
Wow Ann, a miracle indeed and I couldn't be happier for you!!!

Ceesun 06-21-2014 12:48 PM

Re: I'm NED
 
Very happy for you Ann! Way to go! Long may it last! Cathy

thinkpositive 06-21-2014 12:53 PM

Re: I'm NED
 
That is GREAT news! So happy for you. May you forever be NED!

linzer 06-21-2014 01:01 PM

Re: I'm NED
 
Congratulations! I stopped over and read some of your blog, and look forward to reading more.

I'm new here and am using Perjeta as a first-line treatment. It has obliterated my tumor and also reduced my swollen nodes back to normal. I feel so lucky to have joined this "club" with Perjeta as an option.

Wonderful news!!

StephN 06-21-2014 02:25 PM

Re: I'm NED
 
Dear Ann! Tears of JOY for you are clouding my eyes.

You have stood up and taken your *medicine* in many forms to fight off this darn disease. I am not alone in the ability to find NED, so welcome to a small, but growing group!

FLfrost 06-21-2014 04:34 PM

Re: I'm NED
 
CoolBreeze, such wonderful news can't help but be excited and celebrate with you. I too am on Perjeta/ Herceptin combo thanks to it being recently approved for early stage Her 2+ cancers larger than 2 cm or with positive lymph nodes along with taxotere and carboplatin in the neoadjuvant setting. So much hope and encouragement posted here for us all to reach NED status. I too have had a terrific response so far. All that remains of the tumor in my breast is the tissue marker left behind from the biopsy. The positive lymph node which had reduced in size by half is stable. I am on treatment #4 of 6 planned. Taking time to rejoice with others is great medicine!! I pray you remain well for many years to come. God bless you.

KDR 06-21-2014 07:29 PM

Re: I'm NED
 
That is fantastic news! May it always be so!

Karen

DizzyDo 06-21-2014 11:47 PM

Re: I'm NED
 
Wow, what great news! Thanks for sharing!

Cath 06-22-2014 07:19 AM

Re: I'm NED
 
Wow - that is fantastic news! I have been following you on your blog and you are a true inspiration. You have been through so much and you just keep fighting. You deserve this long awaited break. My best to you and may you stay NED forever.

Adriana Mangus 06-22-2014 11:07 AM

Re: I'm NED
 
Congratulations - happy for you. You are a lucky girl!

Love,

Adriana

KirisMum 06-22-2014 01:15 PM

Re: I'm NED
 
So thrilled for you, Ann. This is a real blessing. :-) After everything you have been through, this is the big break you richly deserve.

Kiri did great with herceptin and perjeta as well-- it kept her clear systemically for a year. Unfortunately, her brain mets have returned and progressed since her WBR, so we're on a different track now with a phase 1 trial of an experimental drug, ARRY-380. She had to drop perjeta. :-( It's a real miracle drug; I pray it works for you for many many years!!

annettchen 06-22-2014 03:06 PM

Re: I'm NED
 
CoolBreeze, this is absolutely wonderful! Could not heave read anything better today (or yesterday, or tomorrow, for that matter). I'm so happy for you!

kk1 06-22-2014 04:05 PM

Re: I'm NED
 
You Go Girl!! what a great graduation gift for all of you! Next mile stone your youngest's sons PhD!

BrendaB 06-22-2014 09:48 PM

Re: I'm NED
 
YES! YES! YES! So incredibly happy for you!

Saygoon 06-22-2014 09:55 PM

Re: I'm NED
 
WOW!!WOW!!WOW!! this really gives me hope, congrats - here's hoping for many NED years to come.

SusanN 06-22-2014 10:02 PM

Re: I'm NED
 
AMEN ANN...rejoicing & dancing with you!!!!

Hopeful 06-23-2014 06:57 AM

Re: I'm NED
 
Ann,

So happy to read your news. Best of luck to you with this treatment plan.

Hopeful

crb 06-23-2014 07:29 AM

Re: I'm NED
 
Got goosebumps reading that - SO happy for you!

Lisalou 06-23-2014 11:35 AM

Re: I'm NED
 
Awesome News! So excited for you!

JillaryJill 06-23-2014 07:39 PM

Re: I'm NED
 
Crazy, happy, Wow news!!! You go girl!

nsebesta 06-23-2014 08:09 PM

Re: I'm NED
 
So happy to hear this. You've been through so much and it's finally paying off. Thanks be to God!

Whonoze 06-23-2014 09:37 PM

Re: I'm NED
 
So very happy for you. Congratulations!!!

Soccermom 06-24-2014 10:56 AM

Re: I'm NED
 
Oh Cool Breeze how wonderful!!! I'm doing the happy dance for you!!
I'm so darned happy to hear this!
Much love and many heartfelt hugs!
Marcia

Kkmom 06-24-2014 09:53 PM

Re: I'm NED
 
Wonderful wonderful news --- Let's all join you in the happy dance of life!


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