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-   -   INFUSING Perjeta as we speak!!! I am blessed (https://her2support.org/vbulletin/showthread.php?t=54949)

Sheila 06-28-2012 07:52 AM

INFUSING Perjeta as we speak!!! I am blessed
 
Got a call late yesterday that Perjeta (Pertuzamab) was approved by my insurance as medical necessity...I am getting the first infusion as I type this....the first infusion is 840 mg over 1 hour and then they must observe you for 1 hour. After this, every 3 weeks I will get 420 mg every 3 weeks over 30 minutes...there is no difference for height and weight, it is straight dosing for everyone. I am the first to get this in Chicago at RUSH medical center, so there was lots of celebbrating today by me and the nurses....I feel very blessed to be given this drug, and will receive it with Herceptin every 3 weeks. I must see the cardiologist monthly, due to a very low lvef. I feel like a pioneer...I was first with Haloven too, and it did well...hoping this is a success!!!!!

Joan M 06-28-2012 08:03 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Yes!!! Sheila, this is fabulous news!!! xo Joan

JillaryJill 06-28-2012 08:13 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila, I have to admit sometimes logging onto this board scares me because we build relationships with other survivors, and when they are going through tough times...it is a worry. I have been worried about you and I am so glad that this option came through for you. I saw some posts about getting a 2nd onc involved...but you have the best and now insurance approval of this drug that just got approved by the FDA...you are a pioneer...I hope you realize what you are doing for other survivors and our daughters and grandaughters. All I can say in Thank You and God Bless You as you move forward with this new treatment.

michka 06-28-2012 08:53 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila, I am SOOOOOOOOOOOOOO happy. Now I will hope for excellent results.
Michka

msmanuf 06-28-2012 09:20 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Can someone please tell me does all HER2+ matastisize? I am so scared.

msmanuf 06-28-2012 09:21 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Congratulations. You give me hope.

KaiM 06-28-2012 09:32 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
I am so happy to read this today!!!! Yeah Sheila, this makes my day, such wonderful news. Now may the healing begin!

jml 06-28-2012 09:53 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Yaaaay! You are a PIONEER among many other amazing, wonderful things!
Congratulations:)

Keeping the Faith~

Jessica

Vicki revised 06-28-2012 10:22 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Yea!!! Omg--this is so exciting and encouraging! Hopefully this is your magic bullet!

ElaineM 06-28-2012 10:24 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Count me in on the celebration. I am there (in spirit) celebrating with you and the nurses.
Happy dances, hugs and high fives all around !!!!
You rock pioneer woman !!

Lori R 06-28-2012 10:46 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila,
Amazing!!! Thank you for much for blazing trails for us and keeping us posted along the way.

I hope you have a smooth trail ride and get to the destination called NED.

Lori

MJsHusband 06-28-2012 10:46 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Great news! I'm glad the insurance company came through for you. You are an inspiration for everyone on this site.

KristinSchwick 06-28-2012 10:50 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Oh Shelia- what a wonderful thing to hear! I am so excited for you! Thank your oncologist for me!

MikeF 06-28-2012 11:06 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Hey there fellow Illini I pray this has good results for you. Im glad to hear your insurance cooperated.

Ellie F 06-28-2012 11:08 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Wonderful news. It makes me so happy to hear this today.
Hugs
Ellie

Unregistered 06-28-2012 12:31 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Congratulations! This is my first post to this forum. I am having problems getting CIGNA to approve perjecta for me. Did you have to do a special appeal? I am running out of eoptions and am very desperate. I have extensive liver, brain, lung, one , lymph ode and leptomenginal mets. I feel time is running out.

Shobha 06-28-2012 12:58 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila - great news! Wishing you great results!

Mtngrl 06-28-2012 01:15 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila,

I've been praying for this for you. I hope it is your dream treatment.

Pmoore 06-28-2012 01:21 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Wonderful news!

NEDenise 06-28-2012 02:22 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila!
I have been praying so hard for you!! This is simply WONDERFUL!
I don't know whether the tears are tears of joy, or relief...but they're all for YOU!!!! God is so good!
And you, my friend are incredibly strong and brave!
Sending a BIIIIIIG HUG!
Denise

Mandamoo 06-28-2012 03:04 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Oh yeah Sheila - you pioneering great! May this be the one.

Redwolf8812 06-28-2012 03:15 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Thank you, Lord, for answered prayers!

Mary Anne in TX 06-28-2012 03:32 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Fabulous News!

rhondalea 06-28-2012 04:13 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Well, Sheila, I felt a weight lift when I read your post. I so hope that this one is *the one*. You've really earned a break.

Rhonda

KDR 06-28-2012 04:24 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
YAY, Sheila! This is wonderful news! And to be the first at your facility--you are truly a pioneer!
Take care and best of luck-
Karen

chrisy 06-28-2012 04:28 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
OH, OK I GET IT NOW. The way to wipe the grin off my face (from Jessica's post) was to have my jaw just drop to the floor with a big WHOOP, WHOOP!!!!!

Now my co-workers wonder what I've been up to.

I knew if anyone could do it, you'd be the one to bust the perjeta/insurance wall!!!!!

So happy - now let's get it kicking butt....

KsGal 06-28-2012 04:34 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
YES!!!!!! You go, pioneer woman!!!! :) You are amazing! What a good day it is today to come to the site and read these posts. Im all smiles.

JennyB 06-28-2012 04:40 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Yay well done both you and your insurance company for their sensible reasoning!!

It really is good news day xx

Sheila 06-28-2012 04:45 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Thank you all for all the encouragement...feeling no difference tonight, no side effects..just tired, but that could be that my LVEF is between 19 and 20.....guess that is why I am tired...I see the cardiologist on July 10th, so I am sure he may up my meds...until then, I keep walking a mile a day..slow, but a mile!

dawny 06-28-2012 04:51 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Oh Sheila, that is fantastic news! Thank you our pioneer lady!

Dawn

'lizbeth 06-28-2012 05:34 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila,

am so happy for your pioneering infusion of pertuzumab today. I hope it clears up those nasty little cancer cells and prevents them from ever coming back . . . can't wait to hear more about how it goes.

Laurel 06-28-2012 06:20 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Oh Man! I sign on and see Jessica's wonderful news and now yours! Sheila, I am so stinkin' happy I just cannot stand it! Oh, may this be the magic bullet for our sweet Sheila. Thank you God!!!!!!!!!!!!!!!!!!!!!!!!!

Bunty 06-28-2012 06:25 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila, I have tears of joy reading your post. You are amazing, and I send you much love and hope.
xxxx

nsebesta 06-28-2012 07:20 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Shelia - I am so happy for you - you are amazing to me - God bless you!

caya 06-28-2012 07:28 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila - I am doing the happy dance up in Canada!! so thrilled for you!!

all the best
caya

Becky 06-28-2012 07:48 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Oh, I am so thrilled. Hugs and kisses all around.

Ceesun 06-28-2012 09:30 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila....Yes, Yes, yes, best wishes on this combo...you deserve the best outcome. Praying. Ceesun

Pray 06-29-2012 05:30 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Thank God! I'm so happy for you Sheila! You are an awesome roll model fighter. You go Girl! Hoping and praying for you all goes well! Peace my friend!

Hopeful 06-29-2012 06:17 AM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Sheila,

Best of luck with your new treatment plan.

Hopeful

Patb 06-29-2012 01:14 PM

Re: INFUSING Perjeta as we speak!!! I am blessed
 
Haven't been on in awhile but what good news to
find. This is wonderful and I pray it is the answer
for you. Take care and rest and be happy.
patb


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