Breast self exams????? food for thought...
 

I am linking this article here as I feel it opens up food for thought....and am interested in what my sister's think.

I have felt for a long time that breast self exams may not offer the protection that maybe women feel or may believe are worth the while. What is of great concern to me is the younger generation of women (40 and under)
who are not encouraged to have regular mammograms check ups. In that age group, they maybe under the belief that they are doing due diligence by self exam along with their dr. check ups. But let's face it many younger gals in their 20's are not having regular dr. visits let alone mammograms. It has bothered me that the younger group of women are in a libo type of medical enviroment for their breast health.

The older group (over 40 and up) are instructed to have yrly breast exams. I even question if insurance will pay for mammograms for the younger group of women?

I wonder just when will the medical community become
serious about those younger gals and do much more
to encourage that they receive the very best in
breast health protection.

It is my belief that women should begin at a earlier age to begin regular mammograms. But, yet as of today we hear nothing about this very important health issue!

Okay - love to hear your 2 cents worth.

http://www.medicalnewstoday.com/articles/115116.php

I remember reading something about the scans for younger women are not accurate because of their dense tissues. And MRIs will be too expensive with too many falsy positives.

I agree there needs to be better education for younger women about their breast self-exams. I wonder if teachers do talk about breast cancer and breast exam in their sex education classes. Making babies too early might make their lives miserable. But getting cancer too early could make their lives impossible. Wonder what the government is thinking? Course, as the presidential campaign analysist always says, "it's the 'economy', stupid!"

Do you think we can start a campaign about the issue?

Prevention and early detection is the only 'cure'.

It did not take long for the medical community to emphasize/ recommend getting mammos at 40. And less women have died of bc because of those recommendations... I think, since technology has improved from the days of mammo only detection, it is wise to get the word out on earlier screenings... Mammos still have a high rate of return in the doc's office --they are the work horse of bc detection. I don't think insurance companies will ever budge on suggesting MRI for younger women.
I was told my daughter would need to begin her screening 10 years before the age of my own diagnosis. She will start at 30. The MRI "fund" will be there for her becasue I doubt the insurance company will.

Maria

All I know is that "my cancer"...
 

wasn't even felt by my surgeon it was so deep so what good would a breast self exam done me?

I would check into the Dilon test.
I had this performed in Nov. '07

It is as good/and/even out performes MRI.
Also:
1. It cost a little bit more than a digital mammogram.
I paid $500 in a major NY hospital for the test.

2. You have the results on the spot, I did not even
finish dressing and I had the results.

3. Painless and quiet - you sit in a chair and it is less
pressure than a mammogram.

Jean

I on the other hand had a normal mammogram July 2006 and just 3 months later found the rather large lump in my breast. I am more a component for self breast exams. My daughter who is 35, was advised by my onc to start yearly mammograms now. Her GYN didn't feel this was necessary even with the strong family history we have . I had her come to North Carolina and the Doc. I work for ordered her mammogram. I will do this every year for her if necessary.

If it wasn't for my breast self exam I'm not sure where I'd be..........

I found my lump. Shrugged it off as scar tissue where I had a lumpectomy years prior. When it was time for my annual mammogram about 2 or 3 months later I wasn't going to mention the lump to the tech. because I thought if there was anything their they would let me know...why open a can of worms...ya know? Well thankfully common sense got the best of me (or Godhttp://her2support.org/vbulletin/images/icons/icon7.gif) and I thought I should mention it to the tech. so she could let the radiologist know. After 2 mammograms of that area they said "nope, nothing their." BUT because it was felt they said I should have an ultrasound to make sure. Well, there it was.............................

Five weeks later I had a 4 cm tumor removed that was NOT seen on a mammogram. YIKES! Imagine if I wouldn't have mentioned it....and waited.....Thank God that did not happen.

So I am a STRONG advocate for self breast exam and paying total attention to these bodies of ours.

Thanks for the interesting post.....http://her2support.org/vbulletin/ima...ons/icon14.gif

Mary Jo

Mary Jo,
How frightening!

I will say that who the tech is - is very critical and who reads the film. Yet, often times a tumor can be missed.

Unfortunatley by the time a lump is felt it is usually a fairly good size as it is difficult to palpitate a small tumor
in its earliest stage.

I had years ago a tumor high up on the top of the breast
between my arm pit and breast. I by chance felt a lump
while I was putting my bra on and adjusting the strap.
It was rather sizable and thank God benign. From that
point on I have only had digital mammograms.

Since my dx. with this nasty disease I have come to understand how important early detection.

I have come to think of it as cureable like prostate and colon cancer when caught early. Also, I was not aware
until my dx. just how many younger women were being
dx. It is very upsetting to hear that when a young gal
does feel a lump - very ofen a dr. will advise them that is it nothing and to wait a few months....yikes..

Regards,
jean

And in my case, the radiologist was forever calling the recurrence 'scar tissue'. And why didn't the surgeon and the medical oncologist catch it? They just let it grow for 4 years until I got so sick... Just what can we do?

I had so many false alarm cysts, that I completely ignored my lump for a few months. And as it turned out, when I had my mammo I had two lumps. The one I could feel was DCIS and the one I couldn't was infilitrating ductal carcinoma.

Jean, I never heard of Dilon test. I'm going to check into it.

Joan,
I have linked information for you on the Dilon

http://www.dilon.com/bsgi.php

I had it done at Beth Israel hospital, but it is now
available at NY Presbyterian/Cornell.

All good wishes to you.
Hugs,
jean

I was 37 at dx. I never had a mammo before. I had done SBE frequently but at my annual exam the doctor on a hunch felt that my right breast felt a little more lumpy. She scheduled a mammo which came out clear. She then pursued it further and scheduled a ultrasound and there it was; a 2.5 cm tumor. The worse of it was that it was already locally advanced with 18 involved nodes. Talk about a shock. I think that there really needs to be better screening for younger women.

Tonya

I remember my mother telling me that with her first occurrence of bc, she had a false negative with her mammogram.

I know mammograms are not as good a diagnostic tool for younger women due to the density of the breasts. But I suppose it is better then nothing.

For BRCA positive young women, I was told insurance will cover alternating MRIs with mammograms.

Every one's experience is going to be different. I did self-exams - and found nothing. My cancer was detected by a mammogram - a small cluster of calcifications that led the radiologist to call for more tests. There was no lump. The tests confirmed cancer but it was very early stage - between 1 & 1.5 centimetres.

Had I not had that mammogram, it would not have been spotted. So I've been a bit of a crusader - telling my friends to get their annual mammogram. Because I suspect there's a sense out there that: "hey, there's no lump, I can delay the mammogram".

It can make a huge difference - had I delayed that mammogram out of a false sense of security, especially with the HER2 marker, I would have been a lot worse off.

I am upset with the original CNN report!!!
 

I guess it will all depend upon how each of us found our cancer, but I shudder to think when (or where) mine would have been found had I not have done a BSE that month. My tumor was 1.4 cm. after pathology, but we all know that is was actually smaller than that (with probably a cell or two out that far). It was 6.2 mm. on the initial biopsy.

I was 34 in March 2007 (when I was diagnosed), and with no red flag family history (PGM diagnosed with BC at age 70 in 1979), I wouldn't have had a mammogram for another 6 years. I was pretty much the only one that could feel the lump with initial contact, so my GYN might have missed it at my next exam.

I worry about the CNN article for women like me. I worry that my friends (with or without family history) will read it or hear about it, and not do a BSE. While I understand that all BCs can't be found with a BSE, I don't think the ones that are should be discredited.

I was also a little offended that the article made it seem like the trauma of biopsies that come back benign are too much for women to handle. Puh-leez. I would take 10 benign biopsies over the one I got.

Sorry--this is a soapbox issue for me, and I am stepping down now. :)

Much love,

Oh, and...
 

I also meant to add that UNTIL younger women have options and the right to better breast imaging (at any age, with or w/o history), BSEs are all we have.

All done. :)

This thread is a painful one for me. My little sister, my only sibling, died 23 years ago at age 53 because a doctor in Alaska refused to take seriously the lump she found in her breast. She went to him for 6 months in which he kept telling her the growing lump was just a cyst, with no further exam! She finally was concerned enough to call me in Arizona and ask me if I knew a doctor she could fly down and see. My doctor immediately did tests and found a large cancerous tumor. No one in our family had ever had breast cancer, but both my sister and I had been in southern Utah during the atomic tests at Frenchman's Flat in Nevada. They had always delayed testing until the wind was blowing away from Las Vegas, which of course means the wind was blowing toward southern Utah. Thousand of people, men, women, and children, have died over the years since then because of exposure to radiation due to those tests. I am alive because my sister insisted that I have early tests for BC, and then insisted I have a full bilateral mastectomy when I was diagnosed. She lived for 7 years after her diagnosis only because of aggressive treatment and chemo but if the idiot doctor in Alaska had listened to her in the first place, she might have lived longer. I was diagnosed in 1985, the same year my little sister died. My children were exposed to radiation too and are tested frequently. My sister has been gone 23 years and I am still fighting after 23 years only because I got help early enough. I think we need to spread the word to our friends, sisters and daughters. We need to be aggressive against this insidious disease. If your doctor won't listen to you, find one who will. It's your life! I will step off the soapbox now! Hugs, Tricia

Dear Tricia,
I am so very sorry to hear about your sister.
Here we are 23 yrs. later and "STILL" many dr.
react the same way with younger women.

I would like to see some of approach through ads,
marketing addressing younger women and proper
breast health. Encouraging without using fear,
to follow up on suspcious lumps. While some women
do experience lumpy cysts during their monthly cycles
most know their bodies and what feels normal. If a lump is lasting more than one monthly cycle it should be
checked thoroughly.

Tricia, sadly there has been great amounts of exposure
of cancer causing toxins that we are now finding out
about. I was saddened and sorry to read your post and it was very kind of you to share it with us.

Kindest Regards,
Jean

Dr. Susan Love's take on this.


http://www.dslrf.org/endingbc/conten...1&L3=2&SID=279

Wow, what a powerful thread!

I found my own lump. But i wasn't doing a BSE. And i had just been to the gyno a couple of weeks prior, and she didn't find it.

I was just poking around. My mammo was scheduled 2 weeks after my find. That's my story.

But to even suggest that BSE's are not any good will cause more harm than good. It's a ridiculous article.

This has...
 

ABSOLUTELY NOTHING to do with this thread...but I love looking at Terri's dog so much, I want to kidnap him. :)

Take care,

Aww thanks Krista!!

She is my baby. 11 months old.

I feel very fortunate to have had the knowledge to do my breats self-exams, otherwise it would've probably been too late when I had the compulsory mammo at age 40. I have friends who do have recommended mammo's before 40, but only with a history of breast cancer in a family member. I was low risk and no family history. The only thing that saved me, in my opinion, is that I "knew" my breasts and identified the difference. I don't see any entity ever paying for or recommending mammo's for younger women, just because there aren't enough of us (yet) to warrant the extra cost (or research). Early education may help, but what 20 year old woman ever thinks she will get breast cancer?? It wasn't in my thoughts back then.

coming late to this topic, as usual
 

Debbie,

As always, your thoughts and comments are appreciated--they add to an already interesting discussion.

I think that those of us who found our cancer initially through a BSE are, of course, going to be pro-BSE. No matter what the research says, I am still going to ask my friends to "feel themselves up". I find it hard to believe that it would have been just as fine for me to be diagnosed with a larger tumor (say at my next GYN appt.). I do know what the stats are, but still...you know?

I don't go the "chart in the shower" route for my BSEs, but I do know what is there and will know if something comes up that shouldn't be there. We are years away from younger women getting imaging, and probably too much longer for those of us without a strong family history.

Oh--the unregistered posts may have been from members who are just unable to log in. I have had that happen several times in the last few months, and just ended up not posting instead of posting as "unregistered".

Take care,

Ditto to all.

I think breast self-exam is very, very important. My first cancer was felt by myself just 30 hours before the scheduled mammagram. Because I am always 'flat-chested' the mammagram technician had a hard time to get the picture. Then it was confirmed at ultrasound. And 'boom', I was ready for cancer surgery.

The 2nd time it was still found by myself. Because we trusted the mammagram results, the tiny, painful papable bump was just dismissed as scar tissue. And every time I had mammagram, it was terribly painful that I often had tears.

The surgeon was in denial because she thought she had got it all. The other oncologist trusted the surgeon - truly a good doctor, just did not know how vicious HER2 could be.

So, please do BSE. Please tell people to do BSE and get acquainted with our own anatomy and physiology. Trust but verify. Doctors are only human. They need our help, our information in order to do their job well.

Jean, I didn't see and may have missed any info on other locations where BSGI might be available, but here is something I found in addition to those you mentioned:

"Many leading medical centers around the country are now offering bsgi to their patients, including: Cornell University Medical Center, New York; George Washington University Medical Center, Washington, D.C.; Northwestern Memorial Hospital, Chicago; and The Rose, Houston. For more information on Dilon Technologies please visit http://www.dilon.com."

A.A.

P.S. Tricia, I had a dorky surgeon here in Alaska too, who delayed my diagnosis until she had a total of THREE sequential BIRAD 4's (with my history of nulliparity, age 50, sister/mother/grandmother/aunts with bc..., dense breasts....) I now see my PCP here, but have annual exams in SEATTLE....!!!

Bsgi
 

I also found this, so it may be available also in Portland, Oregon (or they may have sent certain patients elsewhere for it????):

http://www.medicalnewstoday.com/articles/110485.php

I read this with interest, I was never sent for mammo''s as here in Ireland it's only done from age fifty. I was forty six when I felt the lump in the shower. I was in a hotel in the Uk at a training weekend for my job and I think knew straight away it was cancer.
Despite this new report I intend to continue self exams regardless and think this report is doing more harm than good by telling people not to bother.

I just submitted a rather rambling response to this article. One of my queries is wondering how many women will be diagnosed at a later stage (say, in the next ten years) after this article?

I know that the stage of one's BC is not the sole or even independent factor for survival, but wouldn't it always be better to find BC earlier rather than later? Ugh. This article p*sses me off, and that doesn't happen easily these days.

Take care,

semantics?
 

Debbie...
 

I don't think you were being harsh. I knew that you were just relaying information from the article (and other sources) to us, and offering your valued opinion.

I suppose I might feel differently if I hadn't found my lump through BSE. I did not and do not follow the taught methodolgy. The implication of the article (to casual readers) could be taken to mean that BSEs are completely useless. That is what worries me--that women will think "Oh, I can just wait until I see my GYN again". Most of those women will not be reading this thread, nor discussing it with others who have been diagnosed with BC (through BSE or not). They may just consider it one less thing to worry about.

I think I would have felt better about the article if they had gone more into what women (who aren't eligible for early detection screening) can do for themselves.

Take care,