Re: Not good news..
 

Thinking of you and hoping we will hear from you soon.

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Try perjeta and herceptin.....perhaps add taxol......your dog is adorable....stray strong. Eileen

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thanks friends

Well i am writing to you from the hospital after I nearly suffocated after my first dose of navelbine +h. I was put on high O2. I have stopped oxigen now but I am very breathless when I have to move. cant walk much.

I have been suffering from spike in temperature for 6 weeks which makes my quality of life very poor.

I was not accepted on the trial around where i live and they took 5 weeks to look at my case and wasted my time.

Scan show progession to new places: neck and liver in 8 weeks.

I am a mess after navelbine chemo, my lung hurts and cant manage to get any sleep at the hospital 4 days. I have decided to go home tomorrow whatever.

I have won many many battles, endured many treatments. No one can say that I have not turned every stones and fighted every corners kicking and scratching. But I am now showing the white flag.

For the first time I am happy that I don't have a family, because thinking of not seeing my dog in the future is soooo painful already. do you know when I cough she comes and lick my neck she is amazing and so sweet. I have found her a lovely god mother who has a dog already and the dogs play so well together so I know she will be happy.

I know that I will not be accept in any trials in my state and chemo sent me to hospital. And cant travel any more for a trial anyway. If you have any idea let me know

not good news indeed

All love

Re: Not good news..
 

Oh Beans,
This is not the news I was hoping for. I'm so sorry to hear how tough things have been, and still are for you. You certainly have fought the good fight...no doubt about that!

Do your docs have any new ideas? Or old ideas that still have a chance to slow that progression? My knowledge about lung mets wouldn't overflow a thimble...so I don't have any advice to give..but I know we have experts here who will chime in.

My area of expertise is sending love, prayers, healing energy...and cyber hugs. I'm flooding the space between you and me with all of those things my friend. I'll be praying especially hard for your comfort...and for a wisdom for you and your care team, as you plan your next steps.

Thanks for checking in...I've missed you!
Denise

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Hi Fob, I bumped up your post as I was really concerned I hadn't heard from you. So sorry to hear that you're not well and had such a bad reaction to navelbine and herceptin. What have the oncs said about it? Do you think you could have an underlying infection that they haven't managed to get under control and this is contributing to you being so unwell? Please think about staying a bit longer in hospital, I know its terrible as its so noisy but sounds as if you still need support. I would be worried about you at home struggling with your breathing and also having raised temperatures. If there's anything I can do please let me know.

Ellie

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I also hope that you stay in the hospital longer. Could your responses to the Navelbine be the mets getting attacked? Last year on my first treatment of Docetaxel I ended up in the hospital for 3 days. The dose was reduced for the next treatment, Neupogen was added, and I didn't have such strong reactions. The TMs also went down. Do they also give you a slower infusion so it isn't so hard on your system?

Maybe your doctor could reduce the dose so it doesn't hit your body so hard. I still think that your being in the hospital is the best place to be. Please don't give up.

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FOB,

You are admired for having the determination of spirit to post so truthfully your present thoughts and your condition in behalf of all who are concerned about you and the long and difficult struggle you are having. Choices are so hard to find, and to make.

It says so much that you have found someone you trust to be there in difficult circumstances, to watch over you and your precious furry friend, who is loyal and comforting to you. I hope that you will find the peace and comfort that you so deserve for all that you try to be.

As ever,

AlaskaAngel

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I'm sorry that you're having such a battle at the moment FOB. I am thinking of you and hope that there is some improvement for you very soon. I'm glad that you have a good friend who can care for your lovely wee dog.....
Marie

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Dear Beans,
In one of your weakest and darkest moments you mustered up the strength to log on and let us know about your experience with Herceptin and Navelbine. We are privileged to be your confidante and ache for you and the suffering you are feeling.
May you soon feel the peace from decisions made from the wisdom of your experience. May you continue to feel devotion and love from your beautiful and devote puppy who clearly adores you. When you do arrive home, I pray the you will find a quiet comfortable place and restful sleep.
Please surround yourself with support. Say yes to help that is offered. Receive the love from your friends and family.
Love and Hugs,
Kim (from CT)

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Oh Beans...I hate to think of you suffering so. I hope you stay in the hospital as long as needed so they can help with these side effects. Im sending lots of love, positive energy and prayers your way.

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I'm really sorry to hear this too.

Reading your sig though, it looks like you still have a lot of traditional treatments left to you. Does it have to be a trial? Some of the regular ones work for a while at least, and they won't all give you the side effects that navelbine has. Navelbine can be a rough one so don't give up. And, if they can give it again without endangering you, it did shrink my mets a bit but they did put me in their special room that have for risky infusions. Maybe a smaller dose is in order? It's worth a question.

I have had a lot of chemos you haven't yet so there are options for you.

I'm sorry you are suffering so and sounding depressed. I've been there. I hope that when you get home, you'll feel better, your dogs will cheer you up and your doctor will have something more workable for you.

*hugs*

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Dear FOB,

To echo everyone else, really sorry to hear this news but you need to get your strength back to fight another day. Please listen to those wiser than me regarding different treatments.

I feel you want to get home to be with your pup - I can definitely understand, having had to put mine down just a couple of months ago. Glad you found a godmother

Best

Janis

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Dear K -
So sorry to hear that the chest mets are giving you such a problem that you need to be in the hospital. "Navy beans" is an interesting drug and works differently than what you have had, so seemed like a reasonable choice.

I don't think anyone else here has the accumen for research that you put into your treatments, so I feel you probably made a good choice based on information.

Sending prayers the cause of your fever can be found and that you can get back to beating back the cancer.

We all feel llike showing the white flag at times, and you are tired. With some rest may come perspective. It is never a bad idea to make contingency plans, but you will have your dog a while longer.