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Re: Fun Free Opportunities/resources for Breast Cancer patients
This is a newspaper article about our Little Pink House of Hope Retreat in Oak Island N.C. that my family was a part of. I don't remember my speech ever being so fragmented :) and I am stage 3, not 2, but I'm the Paula quoted. http://stateportpilot.com/topstory/article_ba7274c6-251b-11e2-bcd7-001a4bcf887a.html The Mom of the dear family in the photo is struggling with rapid progression of the metastasis now and she is fighting hard. One of her daughters and mine have become pen pal buddies since our retreat.
Little Pink Houses of Hope will be offering vacations in 2013 for women with breast cancer and their families in: Kure Beach, NC; St. John, USVI; Hatteras, NC; Bethany Beach, DE; Key West, ...FL; Emerald Isle, NC; California; Oak Island, NC; Buxton, NC; North Myrtle Beach, SC; Myrtle Beach, SC; and New Smyrna, FL http://www.littlepinkhousesofhope.org/testimonials.html ONLINE APPLICATIONS FOR THE 2013 RETREATS WILL OPEN IN JANUARY 2013! |
Re: Fun Free Opportunities/resources for Breast Cancer patients
The 2013 Casting for recovery retreat schedule in different states and application is on-line now:
http://castingforrecovery.org/wordpr...n-information/ VERY FUN!!!!! |
Re: Fun Free Opportunities/resources for Breast Cancer patients
I have really utilized the resources that were identified on this post, so thank you so much Paula for starting this.
I received my cancer cup today and it really was a nice moment in my work day to see a package on my desk. It contained a very pretty teacup and saucer, a teabag, an angel to carry in my pocket or purse and a handwritten note. Nice thing to see and open after coming out of a heated meeting at work. I've also signed up for the housecleaning and that will take a few weeks to see if they can match me up. I'm also getting rides to Dr. appts through the ACS (I'm not driving) and I'm signed up for the looking good feeling better class on 2/4. I do believe finding ways to treat myself or experience joy is going to help me beat this thing. So for all those that contributed to this post, especially Paula, my day is quite a bit better by your taking time out to send this out to the group. Thank you!! -Julie |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Julie,
I am so happy that you were able to use some of these resources. :) I appreciate you letting me know. I'm sure you'll enjoy the time with the other ladies at the Look Good Feel Better session in Feb! One tip I especially was glad to learn was how to pencil in natural looking eyebrows and they demonstrated a nifty trick I used to make a comfy turban out of a soft tshirt with a scarf wooven through. If anyone is interested, this is the perfect time to get applications in to Camp Kesem, Little Pink Houses of Hope, and Casting for Recovery (see links above). It may work fine to apply later in the year but summer Camp Kesem for kids with a parent with cancer fills up fast and some application deadlines are coming up quickly (ie: if you live in FL, applications for that Casting for Recovery retreat have to be in by February 22nd for the April retreat). There's a whole lot more to that weekend than learning to Fly Fish (although that part turned out to be super fun too). The accomadations are lovely--the one ion Fl is at a Hilton. I'm excited that I'm going to be able to volunteer for Casting for Recovery and Little Pink Houses of Hope this year--wonderful organizations blessing the socks off of women with breast cancer. Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
I'm also going to apply for casting for recovery but there is a glitch with the link for the So. CA trip. It directs me to a resort in PA! Otherwise, I'll apply for the trip in Central CA although I would rather connect with women in my area.
Yesterday I went to a wonderful wig shop that specializes in products for chemo patients and got a great hat (for hikes and walks) and a couple beautiful scarves that are fitted already and idiot proof in terms of tying, etc. and another cute little short hat thing. Very cute! My boyfriend is taking me shopping to buy some new earings as the woman in the shop said you feel a lot better with extra jewelry after losing your hair. Trying to keep things positive! -Julie |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Julie--sounds like you are making the best of your situation. :) I normally am not much into makeup or jewelry but wore them a whole lot more when my hair was gone and they gave me a boost. I'm glad your boyfriend is so supportive and wish you the best as you go through treatment, hanging in there a day at a time. I popped a note to the Casting For Recovery folks letting them know about their link glitch for Southern California. Maybe you want to send them an email too. Some states who don't have CFR are invited to retreats in states that do, but there are retreats in central and northern Cal so looks like a mistake.
------------------ For survivors in the greater seacoast NH/ME area: http://mybreastcancersupport.org/whowehelp.htm (Copied and pasted from the website) How We Help: "Working with the hospitals in Portsmouth, Exeter, Dover, York and the Cancer Care Center of York County, we provide the following to patients right here in the Greater Seacoast area:
And the BreastCancerStories.org website continues to be a comforting way for a patient to read, write and share their story with loved ones and with one another. We also remain so very thankful to the individuals and organizations who donated gifts and services to the patients as well! See a list of those who have helped!" ©2013 BreastCancerStories.org * info@mybreastcancersupport.org * 603.759.5640 PO Box 1576 * Portsmouth, NH 03802-1576 |
Re: Fun Free Opportunities/resources for Breast Cancer patients
I was rejected the housekeeping as they cannot accomodate another patient so I'm back to paying for it since I'm physically not able to do that level of work given I still have a drain in, have this darn pain and starting chemo on Thursday.
Paula, what a wonderful State you live in. CA is broke despite we now pay more in taxes than any other state. I know I personally will pay it forward when I'm able. So many of the resources you listed are the result of donations and volunteers. I'm so grateful for friends, family and especially my boyfriend who did all my laundry tonight. And the people on this site who provide their words of wisdom. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Julie,
What a loving thing for your boyfriend to do your laundry! He sounds like a great guy and you can tell him I said so if you want to :). I hope chemo goes smoothly for ya on Thursday. I got an email back from Casting for Recovery re: my inquiry for So Cal residents: >Good morning Paula: Our southern California program is not happening this year. While we are hopeful we will be ready to go in the future, currently, we are directing any interested participants to the Skytop, PA retreat. Much of our funding comes from grants which stipulate that the women they are supporting must be represented from certain counties within the their geographical location. While the retreat weekend will be of no charge to the selected participants, the transportation to the retreat would be the responsibility of the selected participant. Please let us know if you have any additional questions. I live in the beautiful state of Florida. :) What you are seeing from this list are folks from all over setting up Non Profit organizations and individuals donating resources and reaching out to those with breast cancer---not money coming from the Government or individual state funds. Here is another I found: Link to freebies for women with breast cancer in New Zealand: http://breastcancernirvana.co.nz/free-stuff/ (Info from the site copied and pasted below) "1. The Government’s Bra and Prosthesis Subsidy The Breast Prosthesis Service Payment is payment to people who have undergone a partial or full mastectomy, either unilateral or bilateral, and/or have undergone a lumpectomy, have congenital needs, or have had failed reconstructive surgery, as specified by a specialist or general practitioner. The service payment is available to cover the cost of the following items only:
Please talk to your Breast Surgeon, Breast Nurse, the Ministry of Health or your local specialist bra and prosthesis fitter for more information. See the following resources from MoH, Breast Cancer Support and Breast Cancer.Org for more information: 2. The Government’s Subsidy for Wigs and Hairpieces This Wigs and Hairpiecess Subsidy is a payment to people who suffer from serious hair loss because of a medical condition or from certain cancer therapies. The payments are to reduce the cost of purchasing and maintaining a Wig or Hairpiece or other related products. The service payment is available to cover the cost of the following items only:
For adults (with temporary hair loss), the entitlement is $408.88 (GST incl) over a one-year period. You can claim all of or part of your $408.88 entitlement at any time over the one-year period. For further information, talk to the Cancer Society, your Breast Nurse, the Ministry of Health or a wig supplier recommended by the Cancer Society. 3. Look Good Feel Better (LGFB) Look Good Feel Better is a free service offered to women undergoing treatment for cancer. LGFB helps restore and enhance the appearance of cancer patients during and after treatment. During a two and a half hour workshop, attendees are shown by trained cosmetic volunteers how to cope with the physical side effects of their treatment, such as dry flaking skin and pigmentation changes. They are taken through a step by step skincare and make-up regime, and given guidance on how to apply cosmetics to help camouflage loss of eyebrows, eyelashes and skin colour fluctuations. For more details, please contact LGFB or the Cancer Society. 4. Casting for Recovery Retreat (CFR) Casting for Recovery provides retreats at no cost to participants, which allow people whose lives have been profoundly affected by breast cancer to gather in a beautiful, natural setting and learn to fly fish. It offers participants an opportunity to experience the peace and solitude and the chance to be in the moment that fly fishing provides. The retreat also incorporates a range of other services to promote well-being. The 2.5 day retreat weekend is one of fun and support with the mission of our trained volunteers being that of empowerment and achievement to whatever level you are capable of. Contact Sherrie, the Director at Casting for Recovery. 5. Book: Life Happiness…& Cancer by Phil Kerslake Phil Kerslake wrote Life, Happiness…& Cancer in 2005 after recovering from his sixth cancer battles. This book shows the reader how to use action and attitude to support their recoveries illustrating:
6. Silky pillows Silky pillows are crescent shaped, satin covered pillows available free for women who have had breast surgery to protect the underarm area. They are so soft and soothing when healing. Available from the Cancer Society and through the surgical wards. 7. Funky purses for drains There are little cute material purses made to fit drains post-surgery. So if you have a drain (or even four as I did), you can hide the drains in the purses and go for a walk. These are available through the Surgical Ward or through the Cancer Society. 8. Sweet Louise : Positive Lives with Breast Cancer Sweet Louise supports women with secondary breast cancer. They provide information, practical help and therapies to assist in living a positive life with breast cancer. For help and more information, please contact http://www.sweetlouise.co.nz/ or call their free phone 0800 112277. 9. BCAC Step by Step Support Pack BCAC’s Step by Step support pack is free to anyone diagnosed with breast cancer in New Zealand A diagnosis of breast cancer is a life-changing moment for over 2700 New Zealand women every year. If you are one of these women – BCAC and the Step By Step support pack are here to help. The information contained in each pack will help women understand their diagnosis, empower them to ask questions of their medical team and so make informed choices about their treatment options. Each Step by Step pack contains:
10. Transport to Hospital Appointments The Cancer Society runs shuttles and a volunteer driver programme so please contact the Cancer Society for details. The Red Cross also run community health transport shuttles. In Kapiti, the phone number is (04) 298 4316 (donation/koha appreciated). 11. Support for Carers and Partners The Cancer Society provides a range of support services and programmes for carers and partners as well as cancer survivors. The Cancer Society also provides free individual counselling and support groups for carers and partners. The Cancer Society’s Support Services The Cancer Society has many roles and one of them is to provide a range of support services for people with cancer and their family/caregivers. The Cancer Society offers a number of excellent, free support services which give you:
The Cancer Society has New Zealand’s largest sources of information about cancer and its effects. They have a range of cancer resources including:
It is really helpful to talk to people specialised in working with those affected by cancer and really understand your situation. The Cancer Society provides the following cancer specialists for you to talk to:
It can be great to talk someone going through a similar cancer experience to you. The Cancer Society provides a number of ways to do this e.g. support groups, courses, workshops, by phone and an online forum: a) Support groups (called Can Support) provide the opportunity to discuss (in small groups) experiences and concerns with others who have cancer. All groups are facilitated, meet monthly and invite guest speakers at times. b) Courses, programmes and workshops. The Cancer Society provides a number of courses and workshops for those affected by cancer. These are great for education and also allow you to meet others experiencing the cancer journey. c) Telephone support. The Cancer Society has a peer networking service (called Cancer Connect NZ) where you are linked to a person who has had a similar cancer type to you and can assist you in your cancer journey. If you or someone you care for has been diagnosed with cancer, and you’d like to talk to someone who has been through a similar experience, contact the Cancer Society 0800 CANCER (226 237). d) An online forum. The Cancer Society has an online support forum (called CancerChatNZ) where you can talk to people with similar experiences, ask questions, and share information anonymously.CancerChatNZ offers a safe and supportive on-line forum connecting people through their experience of cancer.If you or someone you care about has been diagnosed with cancer, please visit the forum. All posted messages are viewed by Cancer Society moderators. Please contact your nearest Cancer Society for information, check the website or read the latest edition of CanTalk. 4. Practical Support During Treatment The Cancer Society provides some fantastic practical support services for those affected by cancer. These include:
The Cancer Society provides a range of support services for those who have completed cancer treatment (cancer rehabilitation):
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Re: Fun Free Opportunities/resources for Breast Cancer patients
Jeri's suggestion:
http://www.imermanangels.org/ Imerman Angels carefully matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel). Cancer caregivers (spouses, parents, children and other family and friends of fighters) also receive 1-on-1 connections with other caregivers and survivors. These 1-on-1 relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world. Imerman Angels is a federally registered 501(c)(3) not-for-profit organization. Mission Imerman Angels provides personalized connections that enable 1-on-1 support among cancer fighters, survivors and caregivers. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Huh, So. CA to No. PA. Can't find a longer flight than that? Too bad they won't allow those from So. CA to attend the Central CA location. Very doable. Unfortunately funds are low due to this darn disease. But thanks for following up for me! I'll PM you for some specifics, like do they provide transportation for the airport, etc. My mom may kick in for a free tix with her miles.
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Re: Fun Free Opportunities/resources for Breast Cancer patients
Here is a news report re: "You Can Thrive" in New York which provides free integrative services like reflexology, accupuncture, massage, etc to breast cancer patients undergoing treatment: http://abclocal.go.com/wabc/story?se...lth&id=8994485
I have listed the link to the web site "You can Thrive" previously in this thread, so it can be found above if you're interested. I met it's founder, a fellow breast cancer patient advocate at the Alamo breast cancer symposium in San Antonio in December. She has lost her donated space for the wellness center and volunteers are presently travelling to other temporary donated spaces at spas to provide these free services. Hope those in the forum who live in the New York area can enjoy these services! Sounds great to me. When I was going through alternative medicine cancer treatment then chemo and radiation a dear friend blessed me by giving me massages 1-2 times per week, supplemented by my family's back and foot rubs. It's such a nurturing, relaxing stress reliever. I was so grateful to be the recipient of such loving gifts of encouragement. If you don't have a "You Can Thrive" in your neck of the woods or the means to pay for those kinds of sevices, perhaps a spouse, child, or friend may be willing to provide back and foot rubs for you or a gift certificate for a professional one. It makes a lovely birthday or get-well-soon present. :) Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Crickett's Answer for Cancer
http://crickettsanswer.startlogic.com/ (Copied and pasted from the website) "Crickett’s Answer for Cancer is a registered 501(c)(3) non-profit organization* that was formed in memory of Crickett Julius, who passed away in October of 2006, only four months after being diagnosed with metastatic breast cancer at the age of 39. As her mother and cousin, we founded Crickett’s Answer for Cancer to support women with breast cancer. We provide wigs, mastectomy and lymphedema products, massage, facials, and other pampering services, as a way to help women feel feminine and beautiful despite losing their hair and/or breasts. A woman with breast cancer often feels a loss of her identity and self-esteem as a woman, but may consider these frivolous items for which she should not spend money. Like many women, she may be busy caring for her children, family, and possibly even her own parents... all at once. As a result, she may place herself last on the priority list. Crickett’s Answer for Cancer reminds women with breast cancer to care for themselves too, as feeling good about themselves and having time for relaxation are important for healing, and for managing life with breast cancer. By providing no-cost products and services, we honor these courageous women with breast cancer, as well as the memory of Crickett Julius. We rely on the kindness and generosity of our supporters, including a number of hair stylists, massage therapists, and aestheticians who so graciously offer their services to the patients we serve. You may also support our cause by becoming a volunteer, placing a coin collection canister in your business, sponsoring our golf tournament, or making a tax-deductible donation to Crickett’s Answer for Cancer. In each of these ways, you CAN make a difference in the life of a woman with breast cancer. If interested, please contact us for more information. ~~Requests for assistance are fulfilled on a first-come, first-served basis. Please contact us to ensure that we can honor your request at this time.~~ *Crickett’s Answer for Cancer is a registered 501(c)(3) public breast cancer charity as determined by the Internal Revenue Service. Our tax ID # is 37-1571067. All donations are deductible to the fullest extent allowable by law" |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Circle of Hope
"Financial support is granted to clients who meet the criteria and is used to alleviate expenses associated with breast cancer treatment.1 Breast cancer patients who cannot afford expenses associated with the treatment of breast cancer due to financial hardship are at a serious disadvantage. Circle of Hope believes that by easing the burden of debt, a breast cancer patient can focus on recovery. Circle of Hope may provide support for: Circle of Hope, Inc. is a 501(c)(3) nonprofit breast cancer organization located in Santa Clarita Valley, California. We are dedicated to making a difference today, for a brighter future tomorrow. Circle of Hope is the only breast cancer organization in the Santa Clarita Valley that provides financial, emotional, and educational support services for uninsured and underinsured individuals with breast cancer, their families, and the local community. We have helped over 130 clients to date, issuing over $100,000 in financial support.About Circle of Hope, Inc.
Team Pink is a cancer awareness and community outreach program developed by Circle of Hope. Acting as the educational support branch of the organization, Team Pink promotes healthy eating, exercising, balancing stress, and maintaining a healthy weight. These behavior choices are associated with cancer risk reduction and early detection. We are devoted to helping local individuals in our community--clients must live in, work in, or receive treatment in Santa Clarita Valley. 100% of the proceeds raised and donated are used to give back to the SCV community and support its breast cancer patients and their families." (Copied and pasted from the we bite: http://www.circleofhopeinc.org/) |
Re: Fun Free Opportunities/resources for Breast Cancer patients
About Deliver the Dream
http://www.deliverthedream.org/about-us (Application for free family retreat is on web site) "Our Mission Through consistent advocacy, stewardship and productive partnerships, we will deliver highly effective programs that enable those undergoing crisis or chronic illness to regain strength, mend spirits and become families and kids again. The Need Almost all families are touched by illness or crisis during the course of a lifetime, but some families are struck particularly close to home. When a child develops a life-threatening disease, or a parent is diagnosed with a debilitating illness, the impact on the entire family is intense and often overwhelming. Sadly, families facing serious illness or crisis have little opportunity for respite from the stresses of their daily lives. While there are many camps that assist children facing illness, there are very few programs specifically designed to help the entire family unit. That is why Deliver the Dream Family Retreats are so important. Our program helps meet a vital need for families struggling to endure during times of crisis. August 16-18, 2013 "Families who have a parent with cancer" The Florida FFA Leadership Training Center - Haines City, FL Contact Deliver the Dream Deliver the Dream, Inc. 3223 NW 10th Terrace, Suite 602 Fort Lauderdale, FL 33309 Phone: (954) 564-3512 Fax: (954) 564-4385 1-888-OUR DREAM (687-3732) E-mail: contact@deliverthedream.org |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Free patient resource guide for Her2 Positive Metastatic breast cancer:
http://www.patientresource.com/userf...Breast2013.pdf Other Cancer Patient Resource Guides: http://www.patientresource.com/Cancer_Guides.aspx These come in hard copies they will mail you or some are in pdf format as well. There's some very helpful info in them in the midst of lots of advertising. Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Open invitation to all Women of Courage
This no cost, three day, two night program, deliv-ered in the style only Faces of Courage Founda-tion can generate, will feature fun & exciting expe-riences that will challenge, energize & rejuvenate 80 women currently diagnosed, in treatment for, or survivors of all cancers. This retreat will consist of spa treatments, massages, makeovers, guest speakers, music, dance, arts, and great food. The wise joined together with the brave for a fun-filled weekend at Rotary’s Camp Florida in Brandon, FL. ** Registration opens For new campers July 11 and returning campers Aug. 7 at 12:01am To register call Miss Peggie (813) 988-CAMP (2267) September 6-8, 2013 It sounds like lots of fun to me and I am going to go with a friend of mine. Anybody interested in joining us? Contact them ASAP if you are, as apparently the 80 spots go very quickly. Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
http://theloveyoushare.org/ (For cancer patients in New York State)
"The mission of The Love You Share is to provide financial assistance to cancer patients in need while they are receiving treatment. The hope is that by sending a gift card from a local grocery delivery service and reimbursing patients for transportation costs to and from hospital and doctor appointments, The Love You Share will be able to make life easier, even if only for a short time, for someone who is fighting for life. On October 23, 2013, the organization, The Love You Share, was granted Federal Tax Exempt status under section 501(c)(3) of the Internal Revenue Code. As such, all contributions made to The Love You Share are tax deductible under section 170 of the Internal Revenue Code. Please understand that since The Love You Share is a newly formed, small non-profit organization and is currently finalizing the details of its operations, we are only able to address applications for service in New York State at this time. In addition, as The Love You Share has just been officially initiated, it may take time for us to respond to you." |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Over 2800 children experienced a week at Camp Kesem last summer. This year over 3500 children who have/had a parent with cancer will enjoy an awesome week as 13 brand new chapters are launched across the USA. My daughters have loved being part of this incredible fun-packed summer adventure the last two years. This camp is offered completely free of charge and organized and run by University students who do fund raisers to make it happen. If a child has attended Camp Kesem before, they are warmly welcomed to return and they can apply with early bird registration now. It's like a big extended family If a child has not attended camp before, registration opens on January 1st. Earlier in this thread I posted information re: Camp Kesem if anyone is interested. I'm giving a heads up repeating the link from last time I posted as camps can fill up very quickly.
http://campkesem.org/ Paula "Is there anything too hard for the Lord?" Genesis 18:14 Nope. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Thank you for this information Paula!! What a blessing and outreach, I think I know a family that would love and appreciate this so very much!! :)
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Re: Fun Free Opportunities/resources for Breast Cancer patients
I hope Camp Kesem works out for your friends, Sue! :-) It certainly is a wonderful opportunity. Cancer affects the whole family and is tough on our kids too.
Paula Proverbs 3:5-6 Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take. Here's another free resource: http://www.circleofhopeduluth.org/ (direct quotes copied and pasted below from this web site) Our Primary Missions: Circle of Hope is located out ofDuluth, MN and is an organization committed to serving breast cancer patients in northern Minnesota and northern Wisconsin. It is a 501(c) 3 charitable organization serving the public interest of helping people of any age in poverty and financial distress with a breast cancer diagnosis. Our mission is achieved in several ways. 1. We pay payments for breast cancer treatment bills from designated funds that have been raised from fundraisers, third party fundraisers, small grants and designated donor money. These payments are paid to the providers of the services not to patients. They fill out the paper work. 2. Circle of Hope has set up a fund for paying bills to help breast cancer patients with rent/mortgage, utilities, food and gas cards. Bus passes are also available. The money from this account comes from donations, fundraisers, third party fundraisers and grants. A large grant for this purpose solely came The Susan G. Komen for the Cure, the Minnesota affilate. This is a 7 page application with a cover letter initiated by a social worker or financial worker. This is for Minnesota residents of northern and middle Minnesota. 3.Sometimes other organizations specify a donation for patient bill paying. There is limited money for Wisconsin but there are always new donors who want to help the cause. It is best to call and ask. Circle of Hope is committed toward helping people with a breast cancer diagnosis by improving their lives. Financial assistance will be given to patients as the funds are provided and clients qualify. This group is on hold at the moment: Circle of Hope has a support group called "Circle of Support" which is for any breast cancer survivor and/or gynecological patient. Supporters will be included if there is room if confidential matters are not being discussed. Gynecological patients will be given help in this new start up initiative by being a part of the Circle of Support group and participating in various activities of their choosing. Personalized 1 on 1 conferences: At this time, someone can meet with you on an individual basis. If you would like personalized time or 1 on 1 time to discuss any issue call and we will set up a time that we can meet you. It maybe in the office or we can go out for coffee. We have a resource library of materials.1.218.525.1905, ask for Peggy or call our office at 1.218.464.1626. A partnership of ours: abcd-after breast cancer diagnosis-the power of one-to-one, Take Your Breast Cancer Journey With Someone Who's Been "In Your Shoes."Call 1.414.977.1780 or 1.800.977.4121, You can get immediate support from beast cancer survivors, helpline mentors, be lined up with individualized matches from Match Mentors, and they can even connect you with more resources. This is a free service. Also check out their website at: www.abcdbreastcancersupport.org Circle of Hope is exclusively educational and charitable. (Approved by the Board on 7/2/12.) ---------------------------------------------- Breast Cancer Treatment bills include breast cancer surgery, oncology/chemo, radiation, dental work (related to chemo), lymph edema expenses and prescription loophole drug coverage Payments are made to the providers of services. Patients need to apply for help. Circle of Hope is often the last payee in the process. They help those in financial distress and poverty. There are income guidelines and criteria. There are a couple of ways patients can apply. A client can fill out the grant form online, get the form at their clinic/hospital or call or have the forms sent in the mail (218.525.1905 or 218.464.1626). Bills must be submitted with the application or sent in the mail with theAuthorization For Use or Disclosure of Information Form. The forms need to be filled out by the patient as these are legal documents. How does the block grant treatment payment program work? Financial help will be given based on the application and meeting specific criteria from a grid developed from the application. Patients should always go through their clinics and hospitals to see what financial resources are available first. After this procedure, clients should contact Circle of Hope. This organization follows H.I.P.P.A. policies, adheres to patient privacy and pays directly to providers for breast cancer treatment services. What are other resources that are available to breast cancer patients? Other resources include financial help with bills (rent/mortgage, utilities, gas cards. bus cards, and food cards). More money is available in Minnesota. If you would like to donate, let us know by sending your donation in the mail or adding a donation by credit card online. These applications will be available through clinics/hospitals, as there are specific people who need to fill out portions before the patient fills out his or her section. Talk to an oncologist social worker or financial worker. What are other ways a breast cancer patient can receive help? There are other services offered as well by Circle of Hope. If one does not qualify for financial help, the secretary can point out the resources that are available locally, statewide and nationally to get the needed help. What are " feel good social activities"? Some services may be achieved through our community support group called Circle of Support, telephone calls, one-to-one meetings or participation in inclusive group activities. Circle of Support group meets the last Wednesday of the month (except in August and December). The new time is 4 p.m.-5 p.m.at 314 W. Superior Street, # 610.To participate RSVP to Peggy at 525-1905 or e-mail for details to: peggy@circleofhopeduluth.org. -Clients will need to fill out a simple form the first time they attend. -We are know including gynecological cancer patients along with breast cancer patients in our support group and activities. -Circle of Hope has a resource library of materials, books, and CD's. We have partnered with a few other organizations that can help breast cancer patients. One is: abcd after breast cancer diagnosis, the power of one-to-one. This is the former Y-Me staff and the organization is located in Glendale, Wisconsin. Call and they will line you up with a trained mentor or companion with your same diagnosis to speak to about unanswered questions you may have. They want your calls and there is "the power of one-to-one." There is no cost. It is a non-profit as well. Call 1.414.977.1780 or toll free: 1.800.977.4121. Their website is: www.abcdbreastcancersupport.org Another partner we are recommending is the The Cancer Support Community, a global network of Education and Hope. This group has an online support group that is great. They are located out of Washington, D.C. Both of these agencies Peggy talked to in Texas and has written them. www.CancerSupportCommunity.org. This is a free service. What about gynecological patients? They can call Peggy at 218-525-1905 to participate in support group or participate in activities. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Registration for the 2014 Women of Color Cancer Retreat is now open.
This retreat is held at Rotary’s Camp FL 1915 Camp Florida Road, Brandon, FL 33510 the weekend of August 1-3, 2014. Registration is now open for new and returning campers. If you would like to register for this weekend camp – which starts Friday night at 6pm and is over on Sunday at noon you can call the office at 813 948-7478. This camp is open to any women of color who has been diagnosed with any type of cancer. Registration is on a first come, first serve basis. As with all programs at Faces of Courage this camp is available at no cost to the participants. Please share with any Cancers Survivors who would enjoy spending a weekend being spoiled in a tranquil enviroment. Peggy Sherry Faces of Courage |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Anybody else's children participated this summer in Camp Kesem? This is a free camp for kids with a parent with cancer and put on in many states by University students. I've shared the info and contact link about it previously in this thread. My girls attended for their third year this summer, one of them as a "counselor in training". It is a FABULOUS, action-packed, fun filled week! :) Here is a slide show of the camp my girls got back from last week:
https://www.youtube.com/watch?v=blwPw1pfGmc. It's well worth considering for next summer IMHO if you are interested. Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
My son and two of his friends attended Camp Kesem this summer. They had an absolute blast! It's a wonderful program with dedicated counselors who have just as much fun as the kids. My son can't wait for next year!
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Re: Fun Free Opportunities/resources for Breast Cancer patients
Healing,
I'm glad your son and his friends got to go too. :) It's a really neat camp not based on financial need and an amazing opportunity for kids with a parent having cancer. Did your son tell you about "cabin chats" and the empowerment ceremony? The non-pressure opportunities for the kids to open up and share IF THEY WANT to are a real gift. Here's another resource for anyone in this situation: http://inheritanceofhope.org/compone...ticle/461.html INHERITANCE OF HOPE LEGACY SCHOLARSHIP APPLICATION The Inheritance of Hope Legacy Scholarship is awarded to a college-bound high school senior who is living with a terminally ill parent and who demonstrates a compelling personal and financial need, a strong sense of family, and collegiate promise. The award amount is a one-time payment of $1,000. All three parts of the application must be received by May 31, 2015; the full submission can be done online for your convenience. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
http://www.cancerfac.org/about.php
Cancer Financial Assistance Collition CFAC is a coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges, through: Facilitating communication and collaboration among member organizations; Educating patients and providers about existing resources and linking to other organizations that can disseminate information about the collective resources of the member organizations; Advocating on behalf of cancer patients who continue to bear financial burdens associated with the costs of cancer treatment and care. member organizations The 14 member organizations of CFAC are: American Cancer Society CancerCare CancerCare Co-Payment Assistance Foundation Chronic Disease Fund HealthWell Foundation The Leukemia & Lymphoma Society The Leukemia & Lymphoma Society's Co-Pay Assistance Program Lymphoma Research Foundation The Max Foundation National Organization for Rare Diseases National Marrow Donor Program Patient Access Network Foundation Patient Services Incorporated Sarcoma Alliance Learn more... contact us CFAC is a coalition of organizations and cannot respond to individual requests for financial assistance. To find out if financial help is available, please search the CFAC database. You may also contact each CFAC member organization individually for guidance and possible financial assistance. http://www.cancerfac.org/about.php |
Re: Fun Free Opportunities/resources for Breast Cancer patients
"CancerCare® Launches New Transportation Assistance Program for Metastatic Breast Cancer Patients
New York, NY, February 6, 2012—National nonprofit CancerCare has launched a new program to provide financial help to people coping with metastatic breast cancer. The “CancerCare Get You There” program will provide individual grants to metastatic breast cancer patients for covering transportation costs such as gasoline, parking and tolls, and taxi, bus or train fare to and from their treatment. The program is funded in part by a generous contribution from Celgene Corporation. CancerCare is a national nonprofit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance. Metastatic breast cancer is the most advanced stage of breast cancer, and is among the most commonly diagnosed cancers in women. Approximately 155,000 women are living with metastatic breast cancer in the United States today. “The medical and practical costs associated with the ongoing treatment required by many metastatic breast cancer patients present a significant financial challenge,” said CancerCare CEO Helen H. Miller, LCSW, ACSW. “I’m thrilled to announce our new program, which will provide treatment-related transportation grants to thousands of people living with metastatic breast cancer.” To receive a “CancerCare Get You There” transportation grant, patients must meet certain eligibility criteria and complete an application form. To learn more about CancerCare’s financial assistance programs, visit www.cancercare.org/financial or call 800-813-HOPE (4673)." ---------------- I am passing along this info in hopes it'll be a helpful resource for some people but have no personal experience with CancerCare. If anyone does contact these folks, perhaps they can share here about eligibility criteria, etc and verify that the program is still in operation. Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
"Peppermint & Ginger Comfort Kits are FREE kits created to help provide comfort and help alleviate some of the more common side effects caused by chemotherapy. An “Adult Kit” contains peppermint and ginger teas (which can help ease nausea), a soft bristle toothbrush, alcohol free mouth wash and toothpaste and lip balm (to help ease oral side effects experienced as a result of treatment), warm socks and a relaxation CD. When possible, P&G adds in other goodies as well. Their “Pediatric Kit” contains hot chocolate instead of teas and it’s contents will vary depending on the age of the patient.
If you know of a cancer patient receiving chemotherapy or if you yourself are a patient and would like one of these comforting kits, please go to: http://www.pandgcomfortkits.org/inde...rm=Request_Kit to request one." |
Re: Fun Free Opportunities/resources for Breast Cancer patients
I wonder if these kits are available in Canada? My husband just went and ordered one for me and am really hoping it comes! Thanks for the post!
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Re: Fun Free Opportunities/resources for Breast Cancer patients
I hope they mail the kits to Canada and you get one. :)
Paula |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Copied and pasted from: http://takeabreakfromcancer.org/
For Pete’s Sake Cancer Respite Foundation has an elegantly simple model: provide adult cancer patients facing rigorous treatment or a guarded diagnosis with an opportunity to spend carefree and cost-free time with their caregiver and children in lovely settings. FPS families create priceless magical, memorable moments. Together, even for a glimpse, they experience immeasurable joy amidst devastating crisis. FPS offers comfortable and secure environments for families to celebrate in the face of uncertainty, reflect and reconnect in the midst of turmoil and strengthen their inner faith and share inspiration in the shadow of adversity. We encourage families to confront cancer hardships together. This experience empowers them for what lies ahead and encourages them to share their experiences as a beacon of hope for others. Their success inspires our gift-givers and grant-makers to help us. Our program targets an area that modern medicine struggles to address: the emotional, psychological and spiritual trauma of a cancer diagnosis. FPS provides a safe haven for emotional expression. For some, this travel experience is merely a vacation, for others a respite, and for others precious time for family devotion before an impending death. FPS is the only organization that focuses exclusively on therapeutic respite travel experiences for adult cancer patients, their caregivers and families. Nominate a Patient Are you or someone you know interested in our program? Only Oncology Team members are permitted to make a nomination to our program, and new nominators must undergo a brief in-service to learn about our mission and guidelines. Please contact us and we’ll contact you within 48 business hours. Are you a patient or friend or family of a patient? Contact us and we’ll explain how our program works. You can then give the information to an Oncology Team member. - See more at: http://takeabreakfromcancer.org/prog....aCLfJmNu.dpuf |
Re: Fun Free Opportunities/resources for Breast Cancer patients
http://www.athletes4cancer.org/programs
"Athletes 4 Cancer is dedicated to enriching lives through the healing powers of the elements and the outdoors as a way to move forward after cancer. Camp is open to young survivors who have been diagnosed between the ages of 18 and 40. Camps are FREE for survivors to attend! On occasion, we host special trips where a fundraising component may be required. Participants must arrange and cover their travel to camp. We believe that every survivor should have access to the healing characteristics that the elements and the outdoors offer. Athletes 4 Cancer creates life-changing experiences for cancer fighters and survivors through outdoor adventure programs that challenge, support, and inspire individuals to rebuild their lives after cancer. We recognize an immediate need for viable resources and survivorship-focused programs in our community. Cancer survivors face unique challenges after cancer, with life turning upside down physically, emotionally, and psychologically. Cancer may have spared these individual their lives, but the scars left behind are often more severe than the fight itself. A4C introduces fighters and survivors to the snow or ocean environment, empowering them to find healing and achievement through surfing, standup paddling, outrigger canoeing, snowboarding, and other outdoor adventures. Our goal is to transform survivor outlook on life, empower them to find confidence to thrive, succeed and inspire others facing cancer to do the same." ------------------------- Looks like fun! The next camp coming up without a waiting list and dates to be determined is in Hawaii in the spring. :) See below: 2016 Retreat Schedule: Schedule is subject to change before Jan. 1 for the following year. For complete retreat dates, check back in January. March 27-April 2 Skiing & Snowboarding - Mt. Hood, Oregon - FULL April 17-23 Surf & Standup Paddling - Hawaii - FULL April 25-May 1 Surf & Standup Paddling - Hawaii - FULL November 6-12: Surf & Standup Paddling -- Maui, Hawaii - Waitlist November 14-20: Surf & Standup Paddling -- Maui, Hawaii - Waitlist Spring 2017 Dates TBD: Surf & Standup Paddling -- Maui, Hawaii Hope someboody (ies) here get to enjoy this! Paula My blog: http://jpoliver.com/wordpress/ |
Re: Fun Free Opportunities/resources for Breast Cancer patients
https://www.portpillows.com/
"Hello my name is Amanda Rosen! A couple months ago I came up with an idea to make Port Pillows after some friends of mine said that the seat belt was hurting them when they were in the car driving to and from infusions. They told me that they would stick the seat belt behind their back, so that it would not rub them. My goal was to find a safer way. This is when I reached out for help from the community. I was able to get supplies donated and people to donate their time to sew pillows. The response was amazing! We donated over 1,600 pillows locally and have personally mailed more then 400 special individual requests both in the United States and internationally. We have delivered pillows to all the Levine Cancer Institute Infusions Centers, Levine Children’s Hospital, Healthy & Home and Home Infusion Locations. We have expanded quickly as you can imagine to several hospitals and support groups across the country. We have just completed an order for a cancer support group in England. Shipping all over the world. Port pillows are for anyone that has a port! We have all different colors, themes, special interests and children fabric like superhero’s, princesses and themes that are popular for children and adults! We even take special requests if we can! The best part is that the pillows are 100% free to all patients with a port and that includes shipping. We are asking for donations for supplies and that also supports us being able to continue to provide something so small during such a difficult journey for these very couragous patients. We have had an outpouring of support from volunteers reaching out to see how they can help. It takes all kinds of support to continue this wonderful project and we can’t do it without all of you. A very special lady Mrs. Robin Ciarico Harris is an amazing woman who jumped into action and has become an extension of our family. She is our sewing expert and has put so many hours into this project. We need continued help and support. I have also met a wonderful lady Ms. Susan Morgan with Springs Creative Products Group that has made so many generous donations of amazing fabric. Again the tremendous outreach from the community goes from “Charlotte and Beyond. The community has been great! We have created a Paypal Donation link because people have wanted to donate and do not know where to go to donate. This money will be used for supplies and shipping! More details to follow regarding a local “Sew-A-Thon/BYOM” at the Morrison YMCA. I’m incredibly inspired by the kindness and generosity. The patients are the courageous ones fighting the fight and if we can provide a little comfort during their journey that is what it is all about. Many Thanks!" Amanda Rosen |
Re: Fun Free Opportunities/resources for Breast Cancer patients
For those in the Central FL area:
Copied and pasted from: http://www.compassionatehandsandhearts.org/our-purpose/ "We just can’t get you out of our minds. Some of us have survived cancer. Some of us have watched our loved ones battle it. What we have in common is that we all know how cancer takes a toll on the patient and the family. That’s the reason for Compassionate Hands and Hearts Breast Cancer Outreach. We are volunteers who want to open our hearts and share our time with breast cancer patients and their families. We want to be there for you physically, mentally and emotionally. Perhaps you want to talk about life, your family or just vent. We’ll listen. Perhaps you need a hand with errands or someone to help you with what used to be an ordinary chore. We’re here for you. We are thinking of you right now. And we’re ready to extend our compassionate hands and hearts to help you along this journey." |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Copied and pasted from ; https://compassionthatcompels.org/home/
What’s inside a free Compassion Bag? Be Strong Tote – Anyone who is battling cancer has at one time stuffed their clothes into an oversized plastic bag. Jesus Calling Devotional – God’s word reminds you, a cancer overcomer, that you’re first an overcomer in Christ. DaySpring Notebook – To phonetically write down all those big, Latin sounding words that confirm this won’t go away with antibiotics, and wish you’d paid more attention in science class. DaySpring Journal – To record those thoughts between you and God. Custom Pen – You can never find a pen when you need one. Organic Decaf Tea- Because hospital coffee at 6 pm is often thick as glue. BPA-Free Mug – For when coffee glue can’t be found. Scripture Candy Soft Mints – During treatment your mouth is always dry or suddenly becomes dry when you see a doctor approaching with your chart in hand. $5.00 Chick-fil-A Gift Card – Just to get away from a hospital to a land flowing with sweet tea and nugget sauce. Soft Custom Blanket – To cover you with His love. Besides, if you’re not freezing, the person next to you probably is. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Copied and pasted from: http://www.divaforaday.org/
Diva for a Day Foundation, Inc. is a non profit organization founded in 2010 by two friends who recognize the benefits of a day to escape from the daily stresses a woman will face while dealing with cancer. Through the program, special Divas are selected to enjoy a complete day of pampering at a FABULOUS full service Salon/Spa. It is a day to rest, relax and restore. The Divas have a BEAUTIFUL day that they will always remember. Please help us to continue to spread love and joy to all who need it. If you know a deserving Diva simply click on the nomination form and let us know. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
Just want to say thank you for keeping this thread active! Although I have not used any of these services, it is great to know that they are out there, and that someone is willing to take the time to let us all know!!! YOU ROCK Paula!!!
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Re: Fun Free Opportunities/resources for Breast Cancer patients
Thanks, Suzan! :) It's neat that there are so many non profit organizations out there seeking to encourage those battling cancer.
Here's another: http://www.knittedknockers.org/ "Knitted Knockers are special handmade breast prosthesis for women who have undergone mastectomies or other procedures to the breast. Traditional breast prosthetics are usually expensive, heavy, sweaty and uncomfortable. They typically require special bras or camisoles with pockets and can’t be worn for weeks after surgery. Knitted Knockers on the other hand are soft, comfortable, beautiful and when placed in a regular bra they take the shape and feel of a real breast. Our special volunteer knitters provide these free to those requesting them. Knitted knockers can be adjusted to fill the gap for breasts that are uneven and easily adapted for those going through reconstruction by simply removing some of the stuffing." |
Re: Fun Free Opportunities/resources for Breast Cancer patients
http://chemocessories.org/
(If you can't get through to the web site, try again another time. It looks like they are having technical difficulties right now but it's an active link and they recently sent me a lovely hat, pin, necklace, scarf, and earrings that coordinate well together) Nonprofit Overview Mission: Our mission is to help women with cancer hold onto their strength and sense of themselves during treatment. We create personalized sets of accessories, including jewelry, scarves and turbans, that are designed to lift spirits and remind each woman that treatment in no way diminishes the beautiful woman within. Results: We have donated over 1100 sets to women in 37 states. Target demographics: Women with Cancer Direct beneficiaries per year: 380 Cancer Survivors Geographic areas served: Los Angeles , South Bay and throughout the United States Programs: Provides sets of scarves, turbans and jewelry to women going through Chemotherapy and hair loss. |
Re: Fun Free Opportunities/resources for Breast Cancer patients
2017 Applications to attend a free Little Pink Houses of Hope Retreat are now OPEN!
http://www.littlepink.org/retreatapplication/ Our family was selected to attend a retreat during my first round of breast cancer several years ago and I have been a volunteer at three retreats since (also sooooo much fun!). A Little Pink Houses of Hope Retreat is a WONDERFUL opportunity! https://vimeo.com/186509412 Retreat Schedule 2017 Retreat Locations and Dates Sunday, April 23 to Saturday, April 29 – Carolina Beach, NC Sunday, April 30 to Saturday, May 6 – St John, USVI (Couples only retreat) Saturday, May 13 to Saturday, May 20 – Scottsdale, AZ Sunday, May 14 to Saturday, May 20 – Hatteras Island, NC Sunday, June 4 to Saturday, June 10 – Sedona, AZ Sunday, June 18 to Saturday, June 24 – Key West, FL Sunday, August 20 to Saturday, August 26 – Emerald Isle, NC Sunday, August 20 to Saturday, August 26 – Gulf Shores, AL Sunday, September 10 to Saturday, September 16 – Oak Island, NC Saturday, September 23 to Friday, September 29 – Lake Tahoe, CA Monday, September 25 to Sunday, October 1 Buxton, NC – (Couples only retreat) Sunday, October 15 to Saturday, October 21 – Myrtle Beach, SC Sunday, November 5 to Saturday, November 11 – New Smyrna, FL December TBA – Southern CA |
Re: Fun Free Opportunities/resources for Breast Cancer patients
The Cancer Card Xchange is a 501c3 tax-exempt charity.
CCX collects monetary and gift card donations and then distributes gift cards to verified cancer patients simply to brighten their day. http://www.cancercardxchange.org/p/referrals.html They give free gift cards to cancer patients in active treatment. They do run out periodically but right now is a good time to request one if you are interested. Paula |
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