Re: Afraid
 

Hi Michka,

I've been holding my breath too for you ... hear my relieved sighs along with the rest of us who've posted here!

Carol Ann

Re: Afraid
 

Michka,

I'm sorry I'm coming to this so late. I'm also very relieved that you don't appear to have more cancer in your liver.

Keeping my fingers crossed,

Re: Afraid
 

First , its such great news that it probably is not cancer ! I don't know exactly what "nodular ... is , but t dm-1 's long term effects on the liver are just coming out now, as pts who see a response , are on it for yrs. Lorraine has mild splenetic varices from t dm-1 . varicose veins around spleen. luckily caught in time , before she developed the portal hypertension or esophageal varices that Kathy t did . I actually was the one who spotted it on ct write -up - had seen splenetic varices mentioned last yr - no one mentioned it as they were all so busy looking for cancer. I wasn't familiar with words " splenetic varices ", and scans are full of medical talk I don't understand . so, if the ' experts ' weren't mentioning it , why should I ? not a problem , right ? Wrong ! then the next scan ( 5 months later ) mentioned possible esophageal varices - that I know about because I am an addictions specialist and esophageal varices are a common, often deadly side effect from alcoholic damage to the liver . so I spoke up -good thing !! always ask questions - read the scans. we have decided to continue the drug at a lower dose, now 2.7 , every 4 weeks . scan in May. you will have to talk over options w. your docs. we want a safety net , at least for awhile longer , so we will hope for the spleen to look ok, no worse, and , if so, will continue. God Bless

Re: Afraid
 

Sounding good and so glad you have Phil and Kathy to lend their knowledge!

Re: Afraid
 

we saw a liver specialist - and he looked at all scans back to 2010. he was honest - said radiology missed very small varices appearing by end of 2011, a yr on drug. he had benefit of hindsight , knowing what to look for. by 2013 splenetic varices were bigger, and rad. should have definitely highlighted it last yr, not bury it in report.