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-   -   SMACKDOWN Victory! (https://her2support.org/vbulletin/showthread.php?t=58544)

Bunty 07-12-2013 02:00 AM

Re: SMACKDOWN Victory!
 
So Denise, when you are through this next stage, you have to start to write a book, or a blog, or something to share your incredible spirit to the world. We are all very lucky to count you as a friend, but I think the world deserves you too! So, bring on the Avastin and loads of good news next week. I am a prayer too, and I will continue to send up some special ones!
Love Marie x

foleyjsr5 07-12-2013 03:59 AM

Re: SMACKDOWN Victory!
 
Prayers being sent your way Denise x

KsGal 07-12-2013 04:44 AM

Re: SMACKDOWN Victory!
 
((hugs)) Just want you to know Im thinking of you and praying for you. My brain MRI is Monday as well, and I will have the results a few hours later at my rad onc's office. Hopefully you don't have to go too high on the steroids to get the symptoms under control. If my tumors have grown or, heaven forbid, if there are more of them, I will be doing cyberknife, and I'll be back on steroids too. Time for both of us to catch a break!

carlatte7 07-12-2013 04:47 AM

Re: SMACKDOWN Victory!
 
Oh, Denise...cancer sucks, 'roids suck, and most definately insurance companies suck! Fervent prayers going up for everything involved.

NEDenise 07-12-2013 08:23 AM

Re: SMACKDOWN Victory!
 
Marie - I've always dreamed of writing a book... even before I got cancer, strange, but funny things always seem to happen to me... or around me. The problem is once it's all written down... I don't know how to get it published... and I can't imagine anyone paying money for it!

I never made my blog public because as a teacher, I can actually be fired if my bosses think what I write is "innappropriate" ... profanity, criticism of them...that sort of thing. I can't risk that - my health insurance is through them! But it just occurred to me that I could use a pseudonym... like the Cancer Vixen did! I'll have to mull that over a bit... hmmm

KsGal - I soooo hope your MRI shows only the small lesions we already know about. If that's the case, Cyberknife should be a breeze! Just the break you've been hoping for, and deserve! I'll be thinking of you on Monday, :)

Thanks for the prayers friends, and for the moral support!
Denise

Cat 07-12-2013 09:16 AM

Re: SMACKDOWN Victory!
 
Hey Denise
Use your ninja name. Just don't release the code. People would be looking for the weird named Asian!
Cathy

NEDenise 07-12-2013 09:31 AM

Re: SMACKDOWN Victory!
 
oooooo Cat
You are clever! and devious! I like that!

:) Takuri

ammebarb 07-12-2013 10:37 AM

Re: SMACKDOWN Victory!
 
Sending my prayers, as always, Denise. Hope some more avastin gets approved soon! Hugs.

Barb A.

Cat 07-12-2013 01:58 PM

Re: SMACKDOWN Victory!
 
I'll look for your book ... Takuri ...
Mikachi

Andrea Barnett Budin 07-12-2013 02:40 PM

Re: SMACKDOWN Victory!
 
Dearest Cancer Slayer,

I see that look in the docs' eyes. I hear the worry in the nurse's voices. They are concerned. Too familiar with bad scenarios that can look like this.

I just refuse to identify with my emotional reactions. The experience is duly noted. Acknowledged. Even actively participated in when need be, as you have been doing Denise. You KNOW when to come out of the sunshine state of denial. I don't think it's that, personally. Fully aware, you are choosing to live on the sunny side of the street.

Your fears are not truth. Decidedly, leave no room for imaginings to distort reality. This isn't a time to postulate or assume. Don't blur reality. Just live in The Moment! Which is what you naturally do, I think.

Don't let the voice in your head rule you. You have this moment. And this... Don't go anywhere. This Moment is safe. The love and prayers offered to and for you will sustain you.

Fear can't exist if you are full of the Light of hope. In my heart I believe in miracles. Not bad endings!

Steroids do protect you from the side effects. Even they are not all bad! They're good for something! I love that you negotiated. I would and have done the exact same thing. YOU are in charge of your team of medical experts. It is YOUR body after all!

Do not believe in the story that seems to be presenting itself to you and scaring you.

Love, prayers, genuine caring and enorrrrmmmmoussss admiration -- oh and true appreciation for your wit and wily ways.



Andi

NEDenise 07-12-2013 03:20 PM

Re: SMACKDOWN Victory!
 
Andi and friends ~
Thanks for the votes of confidence... all of them! I need that! It's one of the reasons you guys well never ever get rid of me! You feed my spirit!

So far the side effects are still with me. I think they may have lessened a little, but I admit that might just be wishful thinking on my part. I tend toward that, only usually I call it optimism.

After talking to the neurologist's NP and my MO yesterday...
both offices and my nurse navigator called to check on me today.

I figure it's one of three possibilities...
1 - They are exceptionally compassionate and concerned medical professionals
2 - I'm not concerned enough, and they're more concerned than they should be
3 - They are worried because this is a dangerous situation... and I can't see that from my throne room in the Sunny State of Denial


Personally, I'm partial to option #1 myself! :)

Now...everybody hop on over to the "Keeping your mind off BC" forum and post your Chemo Ninja name! Then pick one of the other funny threads and put a giggle in your heart, and a smile on your face!

Laughter is the best medicine! Right?
Love to all of you!
Denise - Cancer Assassin!

Cat 07-12-2013 04:13 PM

Re: SMACKDOWN Victory!
 
I vote option #1 too. Has to be. Besides how could they not care about you? You must be a very special person to them and if you've told them you are a queen AND ninja cancer assassin they would most definately want to keep tabs on you. I'm hoping the weekend goes fast for you.
I'll be thinking of you Mon. while at my Dr. appt. and saying some prayers.
Mikachi

Andrea Barnett Budin 07-12-2013 06:38 PM

Re: SMACKDOWN Victory!
 
I am going with KATSU...!

A shout to awaken an enlightened state (satori). To focus ones energy!

It fits.

Also read it means victorious!

Thanks Denise for arming me!

And -- easy to remember...

Jackie07 07-13-2013 03:11 AM

Re: SMACKDOWN Victory!
 
Denise,

It's standard procedure for them to call you back the next day to check on you. I've done that many, many times. Our hospital has an 'on-call nurse line' available. They would always follow up our conversation the next day or two to see how I was doing.

And the nurses of the oncology department are usually very good at following up those who are undergoing active treatment. I'm glad you are being closely 'followed' ... :)

jaykay 07-13-2013 06:16 AM

Re: SMACKDOWN Victory!
 
Option 1, keep your chin up, ninja woman!

Laurel 07-15-2013 08:33 AM

Re: SMACKDOWN Victory!
 
Hey Assassin!

Sorry to read of your ongoing tale of woe. Sheesh, you really are due for a serious break. Stay on your throne, oh Empress of the Land of Denial, we have your back. Prayers heading heavenward.

caya 07-15-2013 09:12 AM

Re: SMACKDOWN Victory!
 
Denise, please know that I am sending big hugs and prayers from the Great White North for your MRI to show only good things!
Sorry you have to go back on the steroids, but it is what it is. You are such an inspiration to all of us!

xoxoxoxoxoxo!

all the best
caya

NEDenise 07-16-2013 10:10 AM

Re: SMACKDOWN Victory!
 
Laurel - thanks for the unending prayers and the elevation to Empress! Who knew you were so powerful!?

Caya- You are sweet, but I don't feel inspirational at all! I feel fat, dizzy, and frustrated!:)

Everyone Kind Enough to Check in on Me - Heading off in a few minutes to find out what the next plan of action is. Hopefully, this MRI provides the kind of evidence my docs need to convince the insurance company to get on board. (I know I usually like to self-diagnose but... except that "Mickey" looked a little crowded this time... and the necrotic area looked less dense... I don't know whether this shows what the ins co needs to see or not)

Stay cool everyone - especially my East Coast friends - it's going to be a scorcher today!
Denise

CarolineC 07-16-2013 12:21 PM

Re: SMACKDOWN Victory!
 
Denise,

I hope everything went well today-you have such a dedicated compassionate medical team and that helps so much-I agree with option #1. I am sending alot of positive and white light to you!

Caroline

LeahM 07-16-2013 12:31 PM

Re: SMACKDOWN Victory!
 
Denise I have been trying to figure out how to put into words the emotions I felt when reading your posts. I can't do it. Love and prayers are always being said for you.
Cool hugs to you
oxo


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