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-   -   How can they know this? (https://her2support.org/vbulletin/showthread.php?t=58491)

CoolBreeze 07-05-2013 07:06 PM

Re: How can they know this?
 
Update: my 16 year old is spending the summer across the country in Stony Brook NY. He's studying on a college campus, doing a scientific research project. Only 50 kids were selected to do this so he's in an elite group, but like you, I am not happy with my kid so far away.

Healthwise hasn't been so good for me. They inserted the fiducials in prep for SBRT and I went downhill. Tuesday I have another prep appointment and we'll see if they still want to do this on me. I got really sick Saturday night and was barely conscious for the next 4 days but hey, here I am, bounced back, out of bed, even left the house today. Just not bouncing too high. :) I'm on orders to take it easy but I have my nephew and his baby coming to visit me and nobody to clean the house but me, so easy? What's that?

KirisMum 07-05-2013 07:35 PM

Re: How can they know this?
 
Oh, Ann, sorry to hear that! I was wondering why you'd been so quiet. :-(. Did the fiducials cause the trouble? Please don't overdo things! Nobody CARES what your house looks like! Your son's summer sounds incredible, like he's having the time of his life. :-). Bravo.

Did I tell you I'd watched your video interview on You-tube and LOVED it? So great to be able to have a window into your life with your wonderful family. Inspiring and so much love. That little piece alone is a great legacy. I'll try to find the link and post it here. I watched it several times and forwarded it to Kiri (who has followed your blog for years).

LoisLane 07-05-2013 08:11 PM

Re: How can they know this?
 
Always am so appreciative how wonderfully supportive and insightful all you women are on this site. Anne I have been thinking of you as well.You are a wonderful mother and I know you will just keep moving forward no matter what comes your way. One of these days ladies something will come out to give up more ammunition against these battles. Jacqueline you ALWAYS know what to say. You comments put things in such perspective and leave us with a lovely calm philosophy. best weekend to all Lois

CoolBreeze 07-05-2013 08:32 PM

Re: How can they know this?
 
My oncologist thinks it might be the fiducials. I didn't go to the ER (some things never change) so it's hard to say. I will have yet another CT this week (I think it's #25 now!) and they can look and see if anything is going on.

What happened was I had severe pain in the liver starting Saturday, took a bunch of dilaudid which did no good, and then started vomiting. I vomited for a while and did the college trick where you fall asleep on the bathroom floor with a roll of TP as your pillow. LOL. I woke up, thought I was safe and went to bed, but the vomiting started again. I keep a bucket under my bed now for that. Well I finally fell asleep....and did I ever. From Saturday night to Wednesday morning I was asleep. Occasionally woke up to take a sip of water, which was so exhausting I had to sleep for another five hours. (I am glad my youngest was not home, I hate it when he sees me like this although he's less scared as time goes by)

Wednesday I got up, shaky and weak and went to to the doctor, a regularly scheduled appointment. They gave me perjeta, herceptin, and zometa, but no chemo. I asked the doctor "Should I have gone to the ER?" And he said, "Why, so you could sit in their waiting room for ten hours and then be sent home?" LOL, I love my oncologist, we are totally on the same page. He said when this happens (and it has happened before without the severe pain and to a lessor extent) it is time for symptom management.

But he also thought the pain, a new component, could be fiducial. I will see what the radiation oncologist says on Tuesday anyway.

And, one person cares what my house looks like - me! And, they have a three month old baby, I can't have them walk into a house full of dog dust and spent tissues. :) My house was built in 1946 so is not easy to clean in the first place. Sigh, I would just love to move and live in a new house. Oh well, not now.

Laurel 07-07-2013 06:50 PM

Re: How can they know this?
 
Hey Kiri's Mom (lucky girl to have you for her mama),

Do you know what the difference between God and a doctor is?

(....wait for it......!!!!)

God knows HE'S not a doctor.....

KirisMum 07-08-2013 11:28 AM

Re: How can they know this?
 
LOL, Laurel :-)

NEDenise 07-08-2013 11:41 AM

Re: How can they know this?
 
So true!! Good one!

Especially true of surgeons!
:)Denise

conomyself 07-08-2013 02:20 PM

Re: How can they know this?
 
Laurel, that is so funny! I'll be repeating that one...

Rachael

StephN 07-08-2013 03:53 PM

Re: How can they know this?
 
That is because She is a GODESS!

Women were given Intuition and we need to learn to use it. There are exceptions to every "average" statistic and, Mum, keep that top of mind. OK?


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