Re: HER2 Incidence by Geographical Location
 

Rhonda I have asked my onc for link to the article about Sudan etc he couldn't find it on his work computer but had the link at home from writing an article which used the data. I am hoing he gets back to me with the link this week and then I will post it for you.

Thank you for all you are doing

Jenny

Re: HER2 Incidence by Geographical Location
 

I was unable to check the hormone recep questions. Im ER/PR - andvim in Alabama

Re: HER2 Incidence by Geographical Location
 

Jenny, you're a sweetheart. And who knows? If we get this information, we might be able to figure out just where to look for similar information.

Vicki, I have no idea why the survey wouldn't take the hormone receptor information from you, but I did add it to the results, so it's all good. It was probably just a blip on the site that prevented it, so if we're lucky, it won't happen to anyone else.

To all, we're now up to 74 responses. :) Now that we're on page two, I'll add links here as well.

The survey:

http://www.surveymonkey.com/s/YJ27JNQ

The results:

https://www.dropbox.com/s/bmjt4nq4cz...%20Survey.docx

The graphic I uploaded on page one is now obsolete, so I've deleted it.

Re: HER2 Incidence by Geographical Location
 

I just did your survey but I wrote the city I lived in when diagnosed and not the city I live in now - I believe this is relevant.

It did not ask Her2

Re: HER2 Incidence by Geographical Location
 

From the bottom up...

...the assumption is that the only folks completing the survey are HER2+. The original question that started this was just about geographical location, but I threw in hormone receptor status as a bonus question (so to speak).

As for geographical location...you have hit on the big weakness of the survey. I think we've had some discussion about this, either earlier in this thread or in the thread where the question was first discussed. My hope is that everyone will do as you have done, because that's what the survey should've asked for.

Live and learn. Next survey will be perfect. :)

Re: HER2 Incidence by Geographical Location
 

Just completed...

Re: HER2 Incidence by Geographical Location
 

Re: HER2 Incidence by Geographical Location
 

Hi Cathy,

I don't know if you've seen this, but you may find it useful:

http://statecancerprofiles.cancer.gov/


We're up to 99 responses, but I'm a couple or three responses behind.

Re: HER2 Incidence by Geographical Location
 

Just thought I would give this another bump up. Thanks again Rhonda, 100 and counting. Very interesting!

Re: HER2 Incidence by Geographical Location
 

added my info

Re: HER2 Incidence by Geographical Location
 

We're up to 113, actually, and I've discovered the defect in this idea--more than 100 responses requires a paid subscription.

I don't really want to subscribe to SurveyMonkey for a year, because I'm not going to use the subscription (unless...see below). I can use a monthly subscription to get the results, but then I'll need to terminate the survey when the month is over, so I don't want to do it right away.

If we decide that we want to do more surveys (for which we'll need ideas), then the annual subscription makes sense, and I'm happy to do it. Before doing that, though, I have to figure out who to ask for permission--something I should've done for this one, but it never occurred to me to read the TOS first (leaving me the need to ask both forgiveness and permission). If this is the only survey, then we'll need to pick a termination date, and I'll wrap it up. (There's no rush--the data's not going away, and I'd like those who don't log in often to have a chance to respond.)

Suggestions welcome.