Re: Intrathecal Herceptin Is Working!
 

Courtney,

This is totally fabulous news! The positive results are great, and it's good to know I have other options if more brain mets pop up in the future. You're a pioneer!

Hugs,

Joan

Re: Intrathecal Herceptin Is Working!
 

Way to go Courtney! Keep paving the way!

Re: Intrathecal Herceptin Is Working!
 

I am thrilled for you Courtney!! Whoo Hoo!!

all the best
caya

Re: Intrathecal Herceptin Is Working!
 

FANTASTIC, you rock star! I am so happy!

Re: Intrathecal Herceptin Is Working!
 

Thanks for sharing this wonderful news! We are so happy for you!

SandyR posted an article 5 years ago:

http://her2support.org/vbulletin/sho...0649#post90649

It's amazing how long it takes for a treatment method to become available.

Re: Intrathecal Herceptin Is Working!
 

COURTNEY - FABULOUS news! I'm SO happy for you! I pray for you every night and he/she is listening! Pam gets her results middle of June. She had 9 tumors zapped with SRS LINAC surgery. Time will tell. My best to you as always
Joyce

Re: Intrathecal Herceptin Is Working!
 

Courtney,
Fantastic news!!! I'm so happy for you that intrathecal Herceptin is working, and so fast. I'm happy for us brain mets girls as well to have this other option now. Thanks for paving the way, and God bless you.
Hugs,
KarlaV.

Re: Intrathecal Herceptin Is Working!
 

Courtney,
What awesome news!! You totally rock lady.
Thank you for being so brave and leading the way for all who come behind.
Congratulations again and continued success with the treatment.
Emelie

Re: Intrathecal Herceptin Is Working!
 

I am so happy for you!!! You are an inspiration...

Re: Intrathecal Herceptin Is Working!
 

Add my congrats and best wishes to all the others Courtney, wonderful news!!!!

Re: Intrathecal Herceptin Is Working!
 

Courtney

So happy for you. I think about you a lot you are truely an inspiration to us all.

Love

Diane
x

Re: Intrathecal Herceptin Is Working!
 

Great news really pleased for you and glad no whole brain radiation,
well done!!

Re: Intrathecal Herceptin Is Working!
 

Hi Courtney!
I share your joy and am so pleased for you! I have a question. For others that may be interested, is this now a conventional treatment? Or is this a clinical trial? Or is this an "off label" use of Herceptin? Just curious; do you know?
Joy, joy, and more joy for you!
Love Kim from CT

Re: Intrathecal Herceptin Is Working!
 

Good question, Kim. Its an off-label use. Its been done many times before and there are case studies out there showing complete CNS remission with use of Intrathecal Herceptin. Apparently there are clinical trials coming in the US. But I couldn't wait for that. I had to get these things under control stat.

In other good news - my latest PET/CT shows dramatic reductions in my existing lung, skin and bone mets. Liver is still in good shape. NED here I come...

Re: Intrathecal Herceptin Is Working!
 

Wow that is amazing. Your progress is amazing!
So that means that any oncologist can do the same...ie with full disclosure to the patient that it is an off label use of Herceptin?

Re: Intrathecal Herceptin Is Working!
 

Courtney, I admire your positive spirit. Once more I have to say you are an amazing young women. I am happy to read that there are significant improvements and hope you are now heading to NEDland. Hugs. Michka

Re: Intrathecal Herceptin Is Working!
 

Courtney...you are blazing new territory...and with amazing results! So happy that this is a positive response....you give others hope...keep on amazing us!

Re: Intrathecal Herceptin Is Working!
 

Fantastic news Courtney. Thanks for leading the way! Glad your Onc is willing to think "out of the box"

Kim in CA

Re: Intrathecal Herceptin Is Working!
 

F A N T A S T I C - We get Pam's results from SRS middle of June! My best.
Joyce

Re: Intrathecal Herceptin Is Working!
 

I love hearing news like that !!!!! WooHoo