kiwigirl
12-04-2011, 05:20 PM
Hi All
I thought i would update you all on my progress. In August I was taking my family on a holiday to Hawaii I had a scan to get a clearance to fly. The scan was not good. Two new brain mets and the others had started to grow, I also had a substantial amount of edema.
I started Tykerb and xeloda which is not funded here and cost $2300 every two weeks but i had to try as i was running out of options.
Anyway last week i had an MRI they phoned my onc straight away and said what have you been giving this women. A large number of mest GONE GONE GONE, no new ones and the three remain mets have shrunk by 50% they are now 17mm , 6mm,and 8mm. WOW!!!!!
My edema has almost gone to. I had been feeling much better and now i know why. I've had all the side effects from my meds but i don't care with such great results i just have to look after my self.
My Onc seems to think the WBR has weakened the blood brain barrier allowing med to get through.
So with my fantastic news i feel like its merry Xmas to me.There is always hope and I'm striving to become NED!
Thank you all for your support you have given me with great advice.
Lots of Love to All
And a very Merry Christmas
I thought i would update you all on my progress. In August I was taking my family on a holiday to Hawaii I had a scan to get a clearance to fly. The scan was not good. Two new brain mets and the others had started to grow, I also had a substantial amount of edema.
I started Tykerb and xeloda which is not funded here and cost $2300 every two weeks but i had to try as i was running out of options.
Anyway last week i had an MRI they phoned my onc straight away and said what have you been giving this women. A large number of mest GONE GONE GONE, no new ones and the three remain mets have shrunk by 50% they are now 17mm , 6mm,and 8mm. WOW!!!!!
My edema has almost gone to. I had been feeling much better and now i know why. I've had all the side effects from my meds but i don't care with such great results i just have to look after my self.
My Onc seems to think the WBR has weakened the blood brain barrier allowing med to get through.
So with my fantastic news i feel like its merry Xmas to me.There is always hope and I'm striving to become NED!
Thank you all for your support you have given me with great advice.
Lots of Love to All
And a very Merry Christmas