Looking for IBC doctor?

[StephN]

Dr. Lupe Salazar from the University of Washington Tumor Vaccine Group has been invited to sit on the IBC Foundation's medical advisory team.
She serves as the "go to" doctor on the West Coast when the patient needs a local doctor familiar with IBC. She attended the first International IBC Conference and presented findings from the Tumor Vaccine Group (in Seattle).

Anyone may contact Dr. Salazar through the Tumor Group's web site:
www.tumorvaccinegroup.org (http://www.tumorvaccinegroup.org/)

[Believe51]

Thank you Steph for passing this on to us IBCer's. When this treatment is finished I am hoping that Ed is well enough to travel. Looks like we may be making a west coast visit or a Texas showdown. We trust our doctor but the big guy is getting harder and harder to maintain and the cancer is getting mad now.>>Believe51

[ElaineM]

Thanks Steph.

[Ellie F]

Hi I understand that Dr Cristofanelli (hope I spelt this right) at M D Anderson is reputed to be one of the worlds leading experts for IBC.
I think Midwest Alice goes there to see him.I have considered going there myself from England once I have saved up for the fees!
Hope this is helpful
Ellie

[StephN]

Anyone, please feel free to use this thread to post on doctors who specialize in inflammatory breast cancer, whether they are recommended or maybe should be avoided.

Dr. Salazar, I am sure, could get someone in touch with a good specialist no matter where you live.

I lost an acquaintance who was misdiagnosed as having "mastitis" when she had IBC. Far advanced when they did figure it out. Very sad.

[Believe51]

That is a terrific idea, Steph and as a caregiver to someone with IBC you know how seriously I take the plight of advocating IBC (and male breast cancer). This would be a great thread to have for this very aggressive type of breast cancer. Since we come from all areas of the world this could help so many, even those live outside the USA. Thank you My Dear Steph.>>Believe51

[Midwest Alice]

Dr. Cristofanilli is the head of the IBC clinic at M D Anderson in Texas. He has patients from all over the world. He is my Dr. and I go see him every 3 months. I would highly recommend him. I also have a local Dr. who is every good. I see a benefit from having them working together. Feel free to ask me any questions you feel I may help you with.

[atee]

There is a new IBC Clinic in Boston, which Dr. Cristofanilli introduced me to, and the lead doctor is Dr. Beth Overmoyer. The East Coast seemed to have a void for a long time, so this will hopefully be helpful to women in that area.
When I was asked to join the Global IBC Symposium last year, and after we all met in Houston in December last year, I was so happy (over the top happy) to see all the doctors from around the world that are finally getting on board with what Dr. Cristofanilli and his team are doing, I signed up for next years meeting.
Also, Dr. Salazar's team are working on a vaccine trial for IBC now, and it might behoove women to look into the Tumor Vaccine Group's study for a trial. Steph has given you a link (above) to their website, so all you need to do is call and ask.

Patti Bradfield, President
Inflammatory Breast Cancer Foundation
www.eraseibc.com
The IBC Foundation Radio Show live and podcasts from previous shows
www.thruoureyes.org/ibcshow.html
www.komonews.com/ibc/

[Midwest Alice]

Oct. 2010 France
List of US Doctors on the board of the
Second International Inflammatory Breast Cancer Conference
Melissa Bondy
Massimo Cristofanilli
Fredika Robertson
Kenneth van Golen

[atee]

And, with Fox Chase in PA (Philly to be exact), now having Dr. Cristofanilli's second IBC clinic, there is one more place to go.

Our Foundation was invited to the opening in May and I was (as we all were) very taken with the dedication his new team has. We also toured their facilities, including their bio-repository which was fascinating.

Also, they have a beautiful facility for patients to stay **free of charge** while they are getting treatment. We toured that also, and for myself if I had to stay somewhere, that would be the place.

Patti
www.eraseibc.com

[Midwest Alice]

Here is a current list of IBC clinics from another thread, thought I would move it over here.
Boston/Dana Farber: Dr. Beth Overmoyer oversees the IBC clinic
Houston/MD Anderson: Dr. Tom Buchholz heads the clinic
PA/Fox Chase: Dr. Cristofanilli now in charge of his second clinic

[atee]

Thanks Alice...

Patti

[atee]

One more clinic is added in Arizona. Watch or listen to IBC Fact & Fallacies Wednesday night at 6 p.m. Pacific Time, to hear about the new clinic.