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Joan M
02-16-2009, 04:28 PM
The good news is that there was zero infection and zero cancer cells in the bronchial wash (yippee!), even though this afternoon I coughed up more blood, about 2 tablespoons.

But I'm still very relieved about the pathology results. Your prayers and thoughts have helped me deal with this.

The pulmonologist called this morning with the final results and said the bleeding seemed to be caused by bronchiectasis. The condition was noted in the Jan. 6 PET/CT scan report.

According to Wikipedia , bronchiectasis is "destruction and widening of the large airways. A person may be born with it (congenital bronchiectasis) or may develop it later in life. Bronchiectasis is often caused by recurrent inflammation or infection of the airways." Coughing up of blood is one of the symptoms.

Bronchiectasis probably resulted from the radiofrequency ablation in combination with the wedge resection I had a year prior to the RFA.

After lunch today with two friends from my local breast cancer support group (we we're all off from work due to the holiday), I coughed up blood again.

I called the pulmonologist's office. The nurse called back and said he would call me this evening, but that I will probably have to follow up with radiation intervenion for an angiogram to determine the source of the bleeding and perhaps for cauterization. The nurse said the pulmonologist doesn't handle that procedure.

This coughing business is distressing. Today there was only a small amount of blood, but the second time there was a lot. Also, it can happen anywhere, including my 90-minute bus ride to and from work.

At least tomorrow I'm working from home because I have my Herceptin treatment at 8:00 a.m., so I won't have to travel far.

I hope the problem can be corrected, as bronchiectasis is chronic. I'll wait to hear what the pulmonologist has to say.

Joan

Jackie07
02-16-2009, 05:11 PM
Joan,

Sorry for your suffering. Glad we have avoided the big 'C' word.

Do you have access to a Chinese Herbal Medicine store? There's bound to be some listed in the New York phone book. Tell the Herbal master your problem and they should be able to get you some good stuff to make tea with.

There are more and more researches done these days to find out 'why' those medicine work. Well, it's been experimented on billions of patients and refined over 5 thousand years.

There are also other 'physical' ways to improve your breathing. My oldest Brother had caught tuberculosis in his teens and had always been a little bit on the 'weak' side. He spent over 5 years doing business in China and improved his 'lung power' practicing 'Chi-kung' ('Air' kung-fu).

Hope you feel better soon.

chrisy
02-16-2009, 06:16 PM
Dear Joan,

That must be quite unnerving to say the absolute least. I'm hopeful that a path will become clear on how to repair/control this long term for you. In the meantime, continuing to hold you in my thoughts and prayers.
Chris

Becky
02-16-2009, 07:24 PM
Dear Joan

Sorry for the good news/bad news. At least there is no infection and better yet, no cancer cells.

I am sure your doctors will come up with some plan that will allow your lung to heal so the bleeding will end.

You are on my mind.

CindyE
02-16-2009, 07:58 PM
Joan,
Thank you for the update. You continue to be in my thoughts and prayers. Take care.

Cannon
02-16-2009, 08:34 PM
Wow Joan, that sounds very scary to be coughing up blood any time any place. I'm glad you are getting some answers, and hope you can get some relief soon.

WomanofSteel
02-16-2009, 08:40 PM
Joan, I hope you find some answers and relief from this problem. It would scare the heck out of me and I am Woman of Steel lol. Will keep you in my prayers.

Jean
02-16-2009, 09:39 PM
Joan,
So happy to hear that the test came back negative
and hopefully your're dr. will figure out how to stop
the bleeding quickly.

Keeping you in my prayers Joan.
Kindest Regards,
jean

harrie
02-16-2009, 10:56 PM
Joan, good to hear of your results. HOpe the bleeding stops soon!
Maryanne

SoCalGal
02-16-2009, 11:25 PM
No normal people could write the posts we must write at times. What I mean is I am struck by how matter-of-fact we report what occurs and what we'll do and how we'll manage and most -many - almost all of the times it involves the most scary or life-threatening things. This is not a reality show - it's real life. It is so difficult and I am really struck by that as I read your post.

Joan - I send extra prayers your way for this to resolve. I have a feeling that compared to some of the things you've endured this will prove to be less difficult once they decide what to do.
xxoo
Flori

schoolteacher
02-17-2009, 06:34 AM
Joan,

Glad there was no c. Hope the coughing stops, and they find the source.

Amelia

Believe51
02-17-2009, 08:57 AM
Joan, thinking about you today and sending real positive and healing prayers just for you! You have been through so very much and it pleases me to see you are sounding better. Heal well Sweet Sister and remember you are loved!>>Believe51

caya
02-17-2009, 09:02 PM
Joan - Thanks for the update. I am so glad there was no cancer found, and I hope the coughing/blood condition resolves itself soon.

Good news, not so bad news, I guess.

all the best
caya

jones7676
02-17-2009, 09:16 PM
Glad to hear your good news! Get well!