Believe51
10-30-2007, 11:22 AM
As you all now by now, Tykerb/Xeloda failed for dear Ed. He has been in treatment for 14 months and although we have come close no luck yet. The A/C recipe will be his third treatment option and although we know there are many combos I am getting concerned. The weight loss is a major concern for us at the moment, Friday he will be seeing the Nutritionist again. He is so good too girls, he drinks his Ensures without being asked, plenty of water consumption, eats small meals; tries hard to get himself better.
He is off his chemo schedule for 2 weeks and begins his A/C regime. I am so glad that Tiptoe was with us because in all seriousness, I felt her healing powers. Yes, I held her close and I cried for a moment in diappointment, frustration, fear. You would think that in 14 months that we would be in a better spot. I do thank God for the wonderful MRI results, for the brain mets that shrunk down to 2mm, that it has remained in the bones. No other organ besides the brain has been effected, but the way I see it is: Isn't that enough????
I look at him sitting quietly in his chair with Mookie and push back tears more now than before. I am okay girls, I still believe. I really do believe that he will buy some time out of this adventure. But I also know that he has Inflammatory Breast Cancer and stage IV at that, I know the implications of this type of breast cancer. The realities are sometimes some of the negative thoughts I find myself pushing away. I must remain positive and strong, I must believe, I must trudge on forward so I may see him through. But I also know those hard truths.
I do not know why I am writing today besides the point to speak to our NEWBIES and to express these overbearing emotions. They need to know that there is hope, that we can not look at the statistics (I literally want to puke when I look at them!!). The law of averages proves that statistics are just that, a rough number as a guide, kind of like those tumor markers. Many more men are getting properly diagnosed, have their numbers increased or are they actually becoming aware or not being misdiagnosed??...just a guide. I am planning on Ed to dance with NED, I truly believe he will. And if he does not....well then I know that we did everything possible to try to get him there.
We shall not hide from cancer, we face it head on day to day. We ask all the right questions, we make decisions based on the answers, we hold positve thoughts. Daily we pray, we ask for time and patience, we include ourselves and others in those prayers. I need all of the new friends on the site to know that just because the other 2 combinations did not work for him, does not mean a thing to you. Brenda is a fine example of what Tykerb/Xeloda does when it works.
Please do not lose heart. Keep the faith and fight every day. Remember that every day he fights this he is a survivor, for the dance of NED may never come for him (our reality). ANDI, I am not talking negative, just with the truth that I must live with. I would hate to go on this journey blinded because if that day comes when the fight is over, I never want to say that I did not see. I think that I will be content with the fact I was never in denial. Denial can sometimes take the form of negative thinking (not in this case). I am a positive person trying to be honest.
My words to all: I want you to remember that our journies are all different but our missions are the same. We want to live and shall fight for every moment we can get. This site is the best place I can come to for gathering strength, questions, helpful hints, love and prayers. It is from all of you that I live up to the name Believe. It is the one word you can use to sum up my personality, my life and it was always my nickname (imagine that, and I must live up to it now..hehehe!!).
Thanks girls for listening to me ramble on and on. The point was to let everyone know I AM FINE. Also for our new friends, hopefully I inspired some HOPE. And girls....thanks for loving us. Without you I will not even imagine were I would be. I am certainly a better person because you love me. I am stronger because you have nutured me into this wonderous person. Of course I always had the potential...ROTFL!! I love you more than all of my wordy novellas could ever state; I will love you an eternity. I have been distant lately because of the turns of the recent findings, and that I do appreciate. Do not fear, the prayers are always here whether I come to the site or not. I am a HER2support-addict, Andi and I are getting help though...tehehe!!
Thank you especially PinkGirl for allowing me to share Tiptoe on our journey. Hugging her and sharing the news empowered me almost as much as you have.
I LOVE YOU ALL>>Believe51
He is off his chemo schedule for 2 weeks and begins his A/C regime. I am so glad that Tiptoe was with us because in all seriousness, I felt her healing powers. Yes, I held her close and I cried for a moment in diappointment, frustration, fear. You would think that in 14 months that we would be in a better spot. I do thank God for the wonderful MRI results, for the brain mets that shrunk down to 2mm, that it has remained in the bones. No other organ besides the brain has been effected, but the way I see it is: Isn't that enough????
I look at him sitting quietly in his chair with Mookie and push back tears more now than before. I am okay girls, I still believe. I really do believe that he will buy some time out of this adventure. But I also know that he has Inflammatory Breast Cancer and stage IV at that, I know the implications of this type of breast cancer. The realities are sometimes some of the negative thoughts I find myself pushing away. I must remain positive and strong, I must believe, I must trudge on forward so I may see him through. But I also know those hard truths.
I do not know why I am writing today besides the point to speak to our NEWBIES and to express these overbearing emotions. They need to know that there is hope, that we can not look at the statistics (I literally want to puke when I look at them!!). The law of averages proves that statistics are just that, a rough number as a guide, kind of like those tumor markers. Many more men are getting properly diagnosed, have their numbers increased or are they actually becoming aware or not being misdiagnosed??...just a guide. I am planning on Ed to dance with NED, I truly believe he will. And if he does not....well then I know that we did everything possible to try to get him there.
We shall not hide from cancer, we face it head on day to day. We ask all the right questions, we make decisions based on the answers, we hold positve thoughts. Daily we pray, we ask for time and patience, we include ourselves and others in those prayers. I need all of the new friends on the site to know that just because the other 2 combinations did not work for him, does not mean a thing to you. Brenda is a fine example of what Tykerb/Xeloda does when it works.
Please do not lose heart. Keep the faith and fight every day. Remember that every day he fights this he is a survivor, for the dance of NED may never come for him (our reality). ANDI, I am not talking negative, just with the truth that I must live with. I would hate to go on this journey blinded because if that day comes when the fight is over, I never want to say that I did not see. I think that I will be content with the fact I was never in denial. Denial can sometimes take the form of negative thinking (not in this case). I am a positive person trying to be honest.
My words to all: I want you to remember that our journies are all different but our missions are the same. We want to live and shall fight for every moment we can get. This site is the best place I can come to for gathering strength, questions, helpful hints, love and prayers. It is from all of you that I live up to the name Believe. It is the one word you can use to sum up my personality, my life and it was always my nickname (imagine that, and I must live up to it now..hehehe!!).
Thanks girls for listening to me ramble on and on. The point was to let everyone know I AM FINE. Also for our new friends, hopefully I inspired some HOPE. And girls....thanks for loving us. Without you I will not even imagine were I would be. I am certainly a better person because you love me. I am stronger because you have nutured me into this wonderous person. Of course I always had the potential...ROTFL!! I love you more than all of my wordy novellas could ever state; I will love you an eternity. I have been distant lately because of the turns of the recent findings, and that I do appreciate. Do not fear, the prayers are always here whether I come to the site or not. I am a HER2support-addict, Andi and I are getting help though...tehehe!!
Thank you especially PinkGirl for allowing me to share Tiptoe on our journey. Hugging her and sharing the news empowered me almost as much as you have.
I LOVE YOU ALL>>Believe51