Joy
09-16-2007, 08:13 AM
You people are the very best! Thank you for all of your kind words and compliments and sharing. So I couldn't take it anymore, with the rash-well and probably lots of other stuff, so I called my NP at the center. She prescribed oral minomycin and I started Friday night and my skin is almost completely cleared up. I'm quite shocked as I looked like a teenage boy with cystic acne by friday (I'm not making fun-I had terrible acne growing up took Accutane and everything) and much more back to the ALMOST 40, but still in my 30's, mom. My skin is definitely drier but I have lotions and potions for that.
I was intrigued by information I got in my other thread about acne meds making it worse and I've researched and found some info on that. So I also cut back on the acne oriented treatments. EGFR drug skin reactions rarely contain bacteria, like acne eruptions, and the reason-they think-that antibiotics like minomycin work is not because of the antibiotic property, but rather their anti-inflammatory properties.
This is very interesting to me because I've had eye troubles for years between all of our fun meds and the Colorado climate. I've had extreme dry eye and I've worked with my eye doc a lot on this. One thing he kept wanting me to do was go on minomycin as it does something (can't remember exactly) to help with dry eye.
Well I didn't really want to go on antibiotics, but the skin thing was so painful physically and emotionally that I broke down and I'm here to tell you my eyes look and feel the best they have in years and that result was almost immediate.
My worst side-effect so far is dizziness (my sister likes to ask how I can tell the difference). It is pretty weird and if I were in my 20's I might enjoy it, but it is really too weird for me now. I hope it passes like a lot of early side effects do.
I'm still feeling a little down in that now I'm on that dumb dog- chasing -the -tail -ride of modern medicine with drugs.
I was in a hotel room with a friend last weekend who is on a fair number of meds for other reasons and we are the same age and we just had to laugh as our pill bottles stacked up on the night stands. Then we were sorting them out when we were packing up, "Is that mine-oh-it's yours-okay how 'bout that one". I finally just started cracking up and said, "welcome to the nursing home". It is just crazy business and as maddening as it is, I'm grateful to be here and I do know that these meds have made that possible.
And I hope that the Tykerb is being as ugly on the cancer cells as it has been on my face-I hope that for everyone on this med.
Thanks fo r letting me share and I hope we all find what works to mitigate all these effects. AND thank you all for all of your information-what a difference it makes (there aren't words for it).
I was intrigued by information I got in my other thread about acne meds making it worse and I've researched and found some info on that. So I also cut back on the acne oriented treatments. EGFR drug skin reactions rarely contain bacteria, like acne eruptions, and the reason-they think-that antibiotics like minomycin work is not because of the antibiotic property, but rather their anti-inflammatory properties.
This is very interesting to me because I've had eye troubles for years between all of our fun meds and the Colorado climate. I've had extreme dry eye and I've worked with my eye doc a lot on this. One thing he kept wanting me to do was go on minomycin as it does something (can't remember exactly) to help with dry eye.
Well I didn't really want to go on antibiotics, but the skin thing was so painful physically and emotionally that I broke down and I'm here to tell you my eyes look and feel the best they have in years and that result was almost immediate.
My worst side-effect so far is dizziness (my sister likes to ask how I can tell the difference). It is pretty weird and if I were in my 20's I might enjoy it, but it is really too weird for me now. I hope it passes like a lot of early side effects do.
I'm still feeling a little down in that now I'm on that dumb dog- chasing -the -tail -ride of modern medicine with drugs.
I was in a hotel room with a friend last weekend who is on a fair number of meds for other reasons and we are the same age and we just had to laugh as our pill bottles stacked up on the night stands. Then we were sorting them out when we were packing up, "Is that mine-oh-it's yours-okay how 'bout that one". I finally just started cracking up and said, "welcome to the nursing home". It is just crazy business and as maddening as it is, I'm grateful to be here and I do know that these meds have made that possible.
And I hope that the Tykerb is being as ugly on the cancer cells as it has been on my face-I hope that for everyone on this med.
Thanks fo r letting me share and I hope we all find what works to mitigate all these effects. AND thank you all for all of your information-what a difference it makes (there aren't words for it).