Newbie here!

[swanky]

Hello all! Let me introduce myself - I am 34 and was dx last September while pregnant. I did neadjuvant chemo, 4 AC DD and then had bi lat, one node positive. ER PR negative, slightly her2 neu positive. Finished up with 6 taxol and herceptin which ended 6/18. Now I have had a recurrance in the mast site, above expander and in a supraclavicle node. My onc is going to start me in a trial for BRCA 1 positive which just opened up at Cedars- sinai in los angeles, ca. It was originally for ovarian cancer and now they just opened up for bc patients. After the trial I will probably do more chemo (xeloda and tykerb) then rads.

My question is this: this rapid recurrence is bad, but are there stories out there with people who have gone on to the NED happy place? Or am I just one step closer to mets? I guess these are rhetorical questions because nobody knows for sure, but man am I looking for the light at the end of the tunnel and happy side of things...any input would be appreciated! Much love to all of you ladies who are fighting this disease and helping all us newbies out.

I will figure out the signature thing later and update that. Thanks again.

[Joe]

Swanky,
Hang in there. There are several new compounds and combinations in clinical trials.
The first is a Herceptin/Tykerb combination currently in trials and the second is a new formulation of Herceptin: trastuzumab-DM1 which will enter a phase II trial shortly.
Both have showed outstanding results.

Regards
Joe

[ElaineM]

Hi,
Hang in there !! I have had recurrances in the same general area and kept going for 8 1/2 years.No mets that we know of.
Elaine M

[Chelee]

Swanky, Welcome to the board. You found one of the most well informed group of women and men there are when it comes to her2 bc. (Although for obvious reasons I am sorry you had to join us.) That being said, it sounds like your onc is on top of things and has a good treatment plan in place.

I've been on the boards for quite a while and YES...there ARE women that went on to be NED in a situation like yours. There is always lots of room for hope. Lots of these newer drugs are proving to really do the trick. When you get a chance jump down to the her2 group to make sure no one misses your post. :) Wait till you hear from many of these women that battled bc several times and are NED. So you just hang in there...because there IS light at the end of the tunnel. (I will look forward to your signature...it will help us out as far as what information you need.)

Chelee

[swanky]

Thanks for your responses...I am working on the signature thing. Trying to get it going. I will also post on the other thread...Leea