Tykerb/xeloda Update

[IRENE FROM TAMPA]

I Posted A New Thread Yesterday On My Results But It Never Made It To This Page. It Is In The Message Board Page. I Dont Know What I Did, But If Anyone Wants To Look At, My Results Are There (too Long To Retype)

Have A Great Day All

[Believe51]

Hey My Friend, am I missing them? I did not see it, please tell me where to go. Sending prayers your way.

Waiting For A Miracle...and expecting one soon!!>>Believe51

[IRENE FROM TAMPA]

from the home page click on the Message board on the left column and there will be messages on the right hand side.

Mine titled TYKERB/XELODA SCAN RESULTS.

SORRY ABOUT THIS I DONT KNOW WHAT I DID THIS TIME.

CHEMO BRAIN FOR SURE

[StephN]

Dear Irene -
What wonderful news! Helps make my day. Your post ended up under the Clinical Trials area, which is also appropriate. You have a few anwers there, but thought I would do a copy and paste here of your happy message.

"Well I just came back from seeing my onc. for my results to my scan.

Come August will make 1 YEAR since I began on the trial. This was my first time waiting 3 months before being rescanned. From the 2 tumors which I started out with last year, one has disappeared and the remaining one although still there, remains about the same size as my last Pet Scan 3 months ago. This is good news for me since I generally last about 7-8 months on a drug before progressing.

My CEA did elevate a bit (it's at 4.8) and my 27-29 at 45 (about the same as last one) We are a bit concerned with my CEA going up some since I am very sensitive to this marker, but my onc. is considering me STABLE and we will recheck markers again in a few weeks and then again in 6 weeks. I have a feeling that this tumor might want to start becoming "active" again but time will tell and meantime I am not too disappointed -
GONE would have been great but nothing was found anywhere else which is great.

In the event that I start having progression again, my onc's office will be beginning a NEW TRIAL which should be coming their way in about a month or so through GENETECH. I will have that as a backup plan.
They were not permitted to give me much info on it as yet but it involves HERCEPTIN which has the chemo build right into it. THIS IS VERY INCOURAGING.

So all in all, not a bad visit. I just wanted to let everyone know that this combo has done well by me and gotten me another year....
I pray that it does as well for those of you on it or looking to start. There is much out there in the future that will be coming our way ladies so keep your hopes up and try to stay strong. We are pioneers making way for those to follow and I pray that much will be learned from our struggles.

Keep the faith and take care."
<!-- / message --><!-- sig -->__________________
Irene from Tampa

1996 - DIAG. WITH INFILTRATING DUCTAL CARCINOMA
WITH LYMPH NODE INVOLVEMENT.
TREATMENT: AFC
1999 - RECURRENCE TO AUXILA AND TWO TUMORS IN LIVER.
TREATMENT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECURRENCE TO LIVER
TREATMENT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER.
TREATMENT: RADIO FREQUENCY ABALATION TO LIVER.
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREATMENT: LIVER RESECTION HALF OF LIVER.
2005 - RECURRENCE TO LYMPH NODE OUTSIDE OF LIVER.
TREATMENT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESSION WITH SECOND TUMOR GROWTH.
TREATMENT: AUGUST BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.


"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."

[IRENE FROM TAMPA]

I couln't quite figure out how to do what you did. I am not real computer savy, can get around ok but wasn't even sure how I ended up in the trial area.

But thanks again. Hope all going well for you my friend.

[Esther]

Good news Irene. I have been on Tykerb/Xeloda for not quite 3 months and my CA 27-29 has dropped back into normal range, last brain MRI showed all clear. This has been the miracle drug for me.

Keep us posted on how things go. If you hear anything more about that trial with Herceptin, please post, it sounds interesting.

[hutchibk]

I could be wrong, but it sounds like it might be the trial with Herceptin, pertuzamab and gefitinib (Iressa or Tarceva), which could prove to be a powerful punch.

[Shell]

Irene-

You are my inspiration - am pleased to hear your news, and hang in there!!

Kind regards,