er- girls

[penelope]

How many of you had er- that progressed to bone mets as the first place of matastisis?

This disease is so hard...could you please just humor me.

[penelope]

bump..................

[penelope]

really no one? That is encouraging

[Sheila]

Penelope

My original tumor was 7mm like yours, ER- PR -, and the first place I progressed was to the supraclavicular nodes in the collar bone area....another common place seems to be the mediastinal nodes in the chest, but it would show up on a CT scan....even tiny ones. Hope this helps.

[penelope]

thanks for your reply sheila.

[Lolly]

Hi Penelope,
I'm er/pr- and like Sheila first progressed to supraclavicular and neck nodes, which wasn't surprising as I was node positive...Haven't progressed to bone yet, and I've been Stage IV since 2001.
I remember having sternum pain after my mastectomy, but it eventually disappeared. You should still keep an eye on it, and ask for a PET/CT if it continues to be a source of anxiety for you.

<3 Lolly

[momdeeco]

How about... is there anyone out there that the cancer has not progressed? Am I sure to get matatsis somewhere! I've never had a CT scan. Getting scared!

[michele u]

Karla,

did you not get Taxol? How many weeks of Herceptin? Yes, there is alot of us that have not progressed. It looks like you were stage 1 and neg nodes. I had 34 and not progressed. It will be 4 years this Aug. You have a great chance!!

[Linda]

Hi gals. I have a question for you. Has anyone with her+ er/pr-, very fast growing pathology, had a small (tiny) lung met that just sat there, (while getting NO treatment) didn't grow, for a year or two? My doc says that could be possible, but it doesn't seem like it's that way for us her+ girls (she has a general onc practice with few her+ bc patients)
I've had two false positive (even my doc has admitted that the readings were "bungled') lung ct scans, where tiny spots were found by the radiologist, then shown NED from a following PET/full body CT.
My onc just brought up scanning yet again, just to make sure, and I don't want to go through this again, or the possibility of an unnecessary lung biopsy! I'm high risk -- stage 3a, but just hit two years NED (finished herceptin last August) and absolutely no symtoms (I'm a runner, etc.) Feeling great.
I'd love to hear opinions, experiences, any advice that might help me decide whether to put myself through another scan or not.
Best to all. Thanks.
Linda

[lkc Gumby]

Hi Linda

I am coming up on my 2 yr mark, and my last scans last yr were neg.
Is it possible for you to have the scans done by a more experienced
BC Center?
There other reasons for something to show up on a scan besides mets, so no growth,with no txs for us her girls is a good thing I think.
For me though, I would want to check it out to be sure.
Good Luck

[Linda]

Hi Linda:
Thanks for your reply. That's a good suggestion, to continue to scan but insist on either choosing the radiologist, or traveling to big city center for the test.
Best
Linda, too.

[momdeeco]

Michelle,

I didn't receive Taxol. After asking 2 oncologists about it they both said no. I received almost 7 doses of Herceptin. (6 mo. after chemo) They had to stop the the IV during the last treatment due to Muga results.
I am so glad you are NED. That is awesome! Priase God!!! Thanks for your support and encouragement.