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Joe
01-16-2007, 05:03 PM
<TABLE class=tborder cellSpacing=0 cellPadding=6 width="100%" align=center border=0><TBODY><TR vAlign=top><TD class=alt1>I received this Email today along with a request to post it here:

Joe,
I dont know how to post. I have been visiting this webite since my daughter Sherry was dx april 04 with breast with innumerable mets to her liver. In Nov. 04 she was dx with innumerable mets to brain. she had wbr, clinical trial with tykerb and then xeloda and herceptin which kept her stable for 11 months.
I want you to post this for me as I hope some of the brave ladies who are dealing with cns mets might benefit from what happened to her. On dec. 06, she gave up the long battle and went on to join her other brave sisters on the other side. It was not the brain mets, not the breast or liver mets that brought her down. but, we could find no way to treat the two mets in her spinal cord. They had been there since Nov. 04, and should have been radiated or cyberknifed long ago. No one told us how dangerous they could be. One was on c2 and other was on c4. both 1 or 1.50 cms. If you have any lesions on your spinal cord do not WAIT. Get them treated aside from your other mets. By the time she had symptoms it was too late. ;she was driving the middle of Nov. and Dec. 10 she was gone. This site was a blessing the us. bless all of you, gail prince, mother and advocate for the late Sherry Ciabattoni.5-10-62, 12-10-06 My heart is broken.

From Thankful
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Joe
01-16-2007, 05:06 PM
There is some pioneering work on spinal cord mets being done in Europe. We will post news as it is received. We lost our dear Mary from Tierrasanta two years ago almost to the day of Sherry's passing from the same diagnosis.

May she rest in peace among the Angels,

Christine and Joe

Liz J.
01-16-2007, 08:39 PM
Dear Gail,

My sincere condolences on the passing of your daughter Sherry. You may have saved many lives by having this posted. May she rest in peace and may Blessings be with you and your family.

Sincerely,

Liz J.

Karen W
01-16-2007, 09:00 PM
Dear Gail,

You and your family are in my thougths and prayers. I am so very sorry for your loss.

Hugs,
Karen

Bev
01-16-2007, 09:54 PM
Thank you and so sorry. Bev

Lolly
01-16-2007, 10:10 PM
Dear Gail,

I am sorry beyond words for your loss. Your dear daughter will be remembered in my thoughts and prayers. Thank you for the warning, we will remember.

<3 Lolly

rinaina
01-16-2007, 10:26 PM
Gail, I am so sorry for your loss. Thank you for taking the time and posting such important info which can help so many. Please accept my heartfelt condolences. I am so saddened to lose another sister.

lexigirl
01-16-2007, 11:32 PM
Dear Gail,

Please acccept my symapthy. I am so very sorry that you lost your daughter to this horrible disease.

Hugs and Prayers,
Lexi

Shell
01-17-2007, 05:20 AM
Gail-


I am so sorry for your loss - your daughter is about my age. We will keep you in our prayers.

Regards,
Shell

sarah
01-17-2007, 06:05 AM
Dear Gail,
I am sorry beyond words for your loss. I am also so touched by your generosity of spirit to post this and warn and help others.
love and hugs
sarah

tricia keegan
01-17-2007, 10:21 AM
Gail I too am so sorry for the loss of your daughter and will remember you both in my thoughts and prayers.

Thank you for taking the time to tell us this and I'm sure it's something we'll all remember,your daughter's sad passing and your warning may save a life.
God bless you
Tricia

Sheila
01-17-2007, 12:55 PM
Gail

As a mother I can only imagine what you are going through...I see the look of pain whenever my Mom and I talk about my breast cancer....and even though she is also a survivor, her treatment was minimal compared to mine. The loss of a child is a deep pain that no one ever wants to experience.....you must remember the good times, the love and the special bond to sustain you through this ordeal. Thank you for sharing and possibly saving someone else from what your daughter went through....may you feel the warmth of her memories always.
Sending my deepest sympathy and a big hug.

Mary Anne in TX
01-17-2007, 01:12 PM
Hello Gail!

I can't even begin to imagine what the feeling is with the lose of a daughter. I have 2 sons and 2 granddaughters and 1 grandson. I treasure them all so much more on a daily basis since being diagnosed. My heart breaks for you and the pain of having to say goodbye to such a special girl! God bless you for taking time to share with us when I know you are hurting so. Love and prayers,
mary anne

karen raines hunt
01-17-2007, 01:31 PM
Dear Gail,

I am so sorry for your loss. Thank you so much for the info about the spinal cord mets............you may have saved numerous lives by posting this.

Karen

MGordon
01-17-2007, 01:43 PM
Gail -
I am so sorry for your loss. We lost our friend and compatriot on this site Mary from the same spinal cord issues.
Love and Light
Mel

Jules
01-17-2007, 03:03 PM
I'm so sorry for your loss of your daughter. I also lost my mother, Hope to this horrible disease on Dec.6th. She also had innumeral tumors to her right lung but did live for four years with chemo and Herceptin so I am so grateful for that. I miss her so much but I know she is not suffering any more. I will keep your daughter and your family in my prayers. Julissa