MCS
09-14-2006, 01:57 PM
I did my annual mammogram on the "good" left breast and they found "stable" calcifications.
Now, on my "bad" right breast, calcifications were the culprit for my cancer in 2005.
Radiologist did not take extra pictures, did not do ultrasound, did not tell me where located and get this, they lost the 2005 pictures and did a horrible, short palpable of the breast. Did not even give me a treatment plan of coming back in 3 or 6 months
I did do an MRI also but I know it will not pick up the calcifications until they are a lot bigger. When it's too late?!
In 2004, a needle bipsy was done on my bad breast and returned negative. I have always believed that it should have been biopsied then, not just with a needle. I understand that benign calsifications can overlap malignant ones and not be seen on the mammo. True?
I'm trying to stay calm. Actually I'm quite angry at the radiologist. Here's my plan of action.
ask for an ultrsound
ask radiologist if I'm her2 and gr 3, why should i wait for these things to go bad again?
ask for a second opinion
ask onc where to go from here. are these things controlled because i'm on herceptin and what happens when it stops
ask for prophalaptic removal of the good breast? i know it can go to other parts but at least there would be one less spot to recurr. I don't know if insurance covers? Does anyone of you have had this?
why wasn't i told of this calcification last year when i was dx. i could have decided then to remove the other breast and save all this hassle
Please let me know what else to do and if have experienced this..
Sometimes I feel like no one is really managing my illness but I'm using web to research what to do next. Yet I go to onc office where one of them sits on the fda approval board for breast cancer drugs !
thanks a million to all
MCS ( maria)
Now, on my "bad" right breast, calcifications were the culprit for my cancer in 2005.
Radiologist did not take extra pictures, did not do ultrasound, did not tell me where located and get this, they lost the 2005 pictures and did a horrible, short palpable of the breast. Did not even give me a treatment plan of coming back in 3 or 6 months
I did do an MRI also but I know it will not pick up the calcifications until they are a lot bigger. When it's too late?!
In 2004, a needle bipsy was done on my bad breast and returned negative. I have always believed that it should have been biopsied then, not just with a needle. I understand that benign calsifications can overlap malignant ones and not be seen on the mammo. True?
I'm trying to stay calm. Actually I'm quite angry at the radiologist. Here's my plan of action.
ask for an ultrsound
ask radiologist if I'm her2 and gr 3, why should i wait for these things to go bad again?
ask for a second opinion
ask onc where to go from here. are these things controlled because i'm on herceptin and what happens when it stops
ask for prophalaptic removal of the good breast? i know it can go to other parts but at least there would be one less spot to recurr. I don't know if insurance covers? Does anyone of you have had this?
why wasn't i told of this calcification last year when i was dx. i could have decided then to remove the other breast and save all this hassle
Please let me know what else to do and if have experienced this..
Sometimes I feel like no one is really managing my illness but I'm using web to research what to do next. Yet I go to onc office where one of them sits on the fda approval board for breast cancer drugs !
thanks a million to all
MCS ( maria)