Please Put A Message!

[HavahJ]

I just found out that the tumor in my skull is growing. I had an MRI this morning. I had gamma knife 4 weeks ago. I guess it didn't work. I don't know what's going to happen to me or how long I have but I'm alone and scared. Jan (HavahJ)

[tousled1]

Jan,

You are not alone in being scared. I too am scared and basically alone. I'm sure there are other women on this board who are also afraid - not being sure what the future holds. Have you been or are you on Herceptin? You may also want to try to get into the trail of Tylkerb.

[Joe]

Jan,
4 weeks is much too short a time for the gamma knife to be effective. It usually takes at least 3 months. Your rad onc should have told you.

Hang in there and try and be patient.

Regards
Joe

[Chelee]

Jan, Christine just posted her story today at the top of this board. Please read it if you haven't already. She had brain tumors and I think you will find her story very encouraing and helpful. I think her post was titled "My Birthday message". Seriously...go read it. Its absolutely amazing and I think it will give you alot of hope.

And I do know what you mean about feeling alone...I feel like that too many times. But we are all here for you and anyone that can help...will help. Hang in there.

Sending your warm & healing thoughts.
Chelee

[lexigirl]

Jan-

I wish I was there to give you a big hug. You are not alone. We are all in this predicament together. We are here for you.

Love and Prayers,
Lexi

[Sheila]

Jan

We are all here for you...in good times and not so good...keep positive...it may be to early like Joe said. Sending good thoughts and a big hug your way.

[Lolly]

Jan, we've all felt the way you do now, it's very hard being out on a limb while you wait to see if a treatment has worked. But as the others have said, and especially Joe who's wife is Christine, the founder of this site and a survivor of brain mets, hang in there. I remember some of the others who've had Gamma Knife relating how the tumors would seem to "grow" for a while after the treatment, but this can be due to necrosis; the tumor is actually dying. Hope this is the case with you, try to be patient until you can discuss this with your radiation oncologist....Meanwhile, you're in my thoughts and prayers, don't despair. We're here.

<3 Lolly

[Sherryg683]

This is a lonely club that we belong to but we are not alone. If we could just all get together and give each other a big hug. I'll be praying for you..sherryg683

[RhondaH]

We're here for you. I TOO wish I could give you a big hug. I just said a prayer for you.

Rhonda

[VaMoonRise]

Jan,

I am so sorry for the worry and fear you are going through right now. I know all of us have experienced those feelings during our personal battles with this disease. Please don't think for a second that you are alone, we are all here for you in any way that we can be.

Please be sure to read Joe's post and others who have gone through the scare of brain mets. As difficult as it is to do at times it is important to try to stay as positive as you can as our mental and emotional well being plays a big role in our physical well being. Don't ever give up the hope.

If you haven't already I would really try pushing your doctors to get you on Tykerb as it has shown to cross the brain blood barrior.

I am sending you lots of warm thoughts, well wishes and prayers.

Hang in there Honey, we are all rooting for you.

Love & Hugs,
Nicola

[IRENE FROM TAMPA]

Please do not give in to this. I know the anxiety all this worrying can cause you and at a time where we should not have anxiety in our lives.

We are all here for you if ever you need to vent & express your fears and fustrations. That is the beauty of this board. WE ALL TRULY KNOW WHERE YOU ARE COMING FROM.

Like Joe mentioned, try to stay calm (I know that is easier said then done) and give it some time. Dig deep to find that peaceful place in your soul, this very helpful for the healing. I find myself having to dig down deep in there now and again but it does help.

Keep the faith Jan and hang in there girl. We are here for you.

[sarah]

Dear Jan,
Certainly on this site, you are not alone and Christine's story will give you hope. You're in a kind of shock right now but reading other people's postings, it seems that this is more usual and is not necessarily the cancer growing but may be actually dying.
Also talk to them about Tykerb/Lapitinib (spelling?)
A big cyber hug and I hope you have a good support team near you but you have a lot of people here pulling for you.
Keep fighting and believing,
sarah

[Shell]

Jan-


I am sending warm wishes your way, and hope you get some comforting news. I am constantly amazed at the kindness of those on this site, but also the knowledge we can share - e.g. Joe's post - I hope you speak to your onc soon about your concerns...

Shell

[MJo]

I hope you will do someting you really enjoy today, even if it's small. Like me...I just bought three trashy tabloid newspapers. Delicious. We are all scared and hopeful and worried and determined ... along with you. XXOOOXX MJO

[Ceesun]

I am new here, but I am with you too-try not to despair just yet-I am sure there are things that can be done. love, Ceesun

[mamacze]

Dear Jan,
Getting the diagnosis is awful, but then feeling alone is even worst. I am so glad you felt the urge to post; because, as you can see, you have many sisters on this site who are here for a hug or a good cry.
It seems like the fear tags along with a lack of knowledge. Follow your girl friends advice, do a search on this site for brain mets and read as much as you can absorb. Once you are armed with knowledge, the fear starts to melt. You have only got this tiger by the tail, you need to hop on and ride it out with as much knowledge as you can absorb.
Stay with us Jan, rest in the arms of our prayers (and we do pray for each other) and keep us posted on how you are doing.
Love Kim from CT