Unregistered
03-15-2006, 09:27 AM
I was diagnosed at age 30. I had a 2.3 cm tumor that was a grade 2. I was her2neu positive, but I was never told the score. At the time of diagnosis, my dr. told me not to worry about it. I had a lumpectomy, 6 rounds of FEC chemo, and radiation. I had no lymph node involvement. I have been on tamoxifen for 2 years. I have had 1 MUGA scan, 2 PET scans, 6 CT scans, a million rounds of bloodwork and mammograms, and 2 breast MRIs. So far, so good. My dr. recently told me that if I am "highly motivated", I could go on herceptin now that is approved for early stage disease. I am concerned about doing this since he wasn't sure what benefit it would do me since I am 2.5 years out. He said it was my choice. The side effects of heart problems and other issues really scare me. I have read about people my age going from a 80% score on the MUGA scan to less than 40% after herceptin. My dr. is very advanced in his thinking compared to others in the area so I really trust him, but he has not put 100% support into me going on this medication and has left it up to me. I need help!! I was really hoping after my Tamoxifen to be able to try for a baby and all of this is really overloading me.