Newbie

[DeeUK]

Hi all,

I've posted a couple of times on the forums, but am still very much a newbie to this site.

I live in the UK, and was diagnosed with invasive ductal carcinoma in July 2005, at 29 years old (no family history).

I had WLE on 19th July. Tumour was in left breast, 18mm, grade 3, Er- Pr-, HER2+++ (FISH positive), vascular invasive. Fortunately, the 6 sampled lymph nodes were clear.
I then had bone, lung, liver, pancreas, kidney, gall bladder scans, which came back as 'normal'.

I have just today, had 5 out of 6 FEC chemos, to be followed by 6 weeks radiotherapy. Which will hopefully be followed by Herceptin.

I'm glad to be here on this site, which seems to be full of info and helpfull people :)

Dee
xxx

[Lolly]

Hi Dee, welcome to the site! What does WLE stand for?

<3 Lolly

[athena453]

Hi Dee,

Welcome! I am one of the other younger women on the site at 27. I was dx this May stage 3C, 30/34 nodes +, ER/PR-, Her2+++. I just finished chemo (AC followed by TCH) and am now doing rads and herceptin. I have very little side effects from the herceptin alone. I was getting infusions once a week, but now have them every three weeks.

Sorry you had to join us!

[michele u]

Athena,,

Wow, i know have unfortunatley found someone like me with 30 pos nodes!! I'm 2 years out with no recurrences. I hope this will give you both some hope. I was told i would be gone by know and look--I'm still here

[DeeUK]

Just thought I'd pop in, to say everything seems to be going well :)

Lolly, WLE stands for Wide Local Excision, or a lumpectomy.


Well, chemo finished last December, followed by 30 radiotherapy sessions.
I've had my second 'round' of Herceptin (which I'm grateful to be getting, as so many women in the UK aren't being given access to it), which seems to be going well so far.

I also met a lovely man, in January.. and celebrated my 30th birthday on 3rd April!
It's certainly not all doom and gloom in my life, a the minute! :D

[RhondaH]

Glad things are going so well for you, hope you have MANY more years of happiness.

Rhonda

[shaza]

hi dee
just had to reply to you as im from the uk as well.
among all the devastation im pleased ive found this site although saddened for us all that we need it .
i was diagnosed in 2003 with DCIS ,clear margins ,no node involvement and not hormone dependent ,a couple of months ago a scan showed mets to amost my entire right lobe of my liver ,i was in total shock and still find it difficult to come to terms with , anyway i was put on FEC to and have just had my 4th ,with 2 more to go ,my onc says my tumour markers have halved and she is pleased saying im responding so well to chemo ,my her status results have just come back showing her2+ staus ,which means herceptin after chemo of at some point ,she says i will be given herceptin but she will decide on the timing seeing as im responding so well to chemo , i notice your onc isnt starting you on herceptin just yet either till after chemo ,another group i belong to cant understand why im not starting herceptin right now ,but i suppose its just different oncs ways , anyway hope you dont mind me replying to you ,it was good to see another newbie also from the uk
take care
lol
sharon