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Lyn
01-31-2005, 04:02 AM
Hi everyone, well I can highly recommend a holiday away from phones and hospitals but in the end it is just a smoke screen, I felt rested but that soon changed, I had to get back into it this morning. I had my biopsy done by my GP, which also included a punch biopsy, I phoned my onc on the cruise when I could get a signal, and explained it was getting more inflamed so his secretary spoke with him and rang back and told me he said to enjoy my holiday. After the biopsy I went to the hospital, and sat beside a lady I had met before and she was upset, she arrived there to be told they were keeping her in overnight because she was having Cisplatin high dose and Gemzar and this would be her treatment for a few months, she had a visitor from New Zealand and had to change her plans. I told the nurse that I didn't want that if I had to stay in, I was joking and said you would have to put it in a back pack for me. The nurse quietly said I may not have an option there isn't much left for me to have, well that was a bucket of water. Then I went home to make an appointment to see my Onc on Friday because I wouldn't get the result until the morning when I saw my GP, that conversation was enough to make me want to give up, the last thing I needed to deal with was an arrogent member of the hospital. The specialists appointments section said that they were booked out until the following Friday, I explained that I only needed to get the result of the biopsy about 10 minutes tops, I was then transferred to her superior, who was hostile right from the start, and arrogent, she said there was no hurry to fit me in, I explained again it would be only about 10 minutes because I needed the result on inflammatory breast cancer, she blurted back, I know what you have, I know what all my patients have, that lifted my blood pressure, I told her that I didn't even know what I had how do you, I told her I had invasive breast cancer before and inflammatorywas more agressive, so she then said well I should ring Boris my onc, and I said please do, so she said I know he will say yes anyway, PLEASE why the grief, do these people think we have an nothing better to do than bother them, she then said I will get an appointment time sent out and then hust hung up, is it me being over sensitive, but having to deal with people like this as well doesn't give us much to look forward to, especially since the chemo unit made changes as well, turns out it was the new nurse but something must have been said because she met the decision half way and had arm chairs put in the tea room, but she was short with me when I told her the drip had finished, she came over and testedly said she was the only one there, so I said as long as you turn it off I don't really care, then my poor long time nurse hadn't put the sticker for the Herceptin on the bag, first time ever so she got into trouble because the new one was going to give it to me again, she didn't think to ask. At least my other half admitted he missed me, maybe I will feel better tomorrow, but I still have to get through until Friday and the unknown, and I don't like my chances of it being nothing.

Love & Hugs Lyn

*_Patty D_*
01-31-2005, 10:52 AM
My gosh Lyn- what a terrible ordeal you have had. There is no excuse for the way you were treated! I would call back to your GP and Onc and demand that at least you can get a call asap so you dont have to be in suspense forever! (and in our cases- just a few days wait can seem like forever!) I cant imagine any professional -especially one who treats cancer patients being so insensative. I would also complain to your doctores about the way you were treated and how much stress it caused you! If you dont get a satisfactory reply - change drs!!!!!
I will keep you in your my thoughts- please dont give up- be persistant-agressive! You have that right as a apatient to be informed in polite and timely manner of any and all health related issues, procedures etc. I think sometimes Drs just dont realize the stress they cause us by "blowing us off" Take care and email me if you like-just to vent and keep us all posted. You have lots of suppport here. God Bless....Patty D

StephN
01-31-2005, 01:13 PM
OH! Lyn -
Sounds like that head nurse just came out of the military or something! They have appt times in little boxes and THAT is ALL they know!
A "work-in" is NOT in their vocabulary.

The waiting is not anything they take into consideration - unless the DOC or his Nurse Case Manager tells them to get you in SOMEHOW.

Fortunately, my med onc WILL call me with anything important - like my liver or brain mets! His message is on my machine before I get home from the clinic - they are so fast with reporting bad scan results to the oncs at my cancer center. He has ALSO called with GOOD news.

Just know that is highly rare for Imflammatory to present as a second primary. One of my survivor workout mates had some kind of weird rash going on as well and got all worried about Inflammatory. She has the same med onc as I - it turned out to be nothing related to cancer (they thought they also had a node enlargement at the same time and that was some kind of twisted vein on the untrasound). The whole thing had her very nervous.

Guest
02-02-2005, 05:55 AM
Hi Lyn-what a dreadful time you've had. Who are these people? They're supposed to be operating with compassion, not acting out some power trip!


Where in Australia are you? I'm in Perth WA-if you want to email me direct I'm at gjkarelse@bigpond.com.au or just keep us aware of how things are turning out.


All the best
Pauline